Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics.

@article{Forsyth2014HaemophiliaER,
  title={Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics.},
  author={Angela L Forsyth and Marilena Gregory and Diane Nugent and Cesar Garrido and Trine Pilgaard and David L Cooper and Alfonso Iorio},
  journal={Haemophilia : the official journal of the World Federation of Hemophilia},
  year={2014},
  volume={20 1},
  pages={44-51}
}
Psychosocial factors have a significant impact on the quality of life of persons with haemophilia (PWH). The Haemophilia Experiences, Results and Opportunities (HERO) initiative was developed to provide a greater understanding of the psychological components which influence the lives of PWH. This article describes the HERO methodology and the characteristics of respondents. Two online surveys (one for adult PWH ≥18 years and one for parents of children <18 years with haemophilia) were developed… CONTINUE READING
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