HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD)

Abstract

Huntington disease (HD) is a chronic, debilitating genetic disease that affects physical, emotional, cognitive, and social health. Existing patient-reported outcomes (PROs) of health-related quality of life (HRQOL) used in HD are neither comprehensive, nor do they adequately account for clinically meaningful changes in function. While new PROs examining… (More)
DOI: 10.1007/s11136-016-1386-3

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