Global Retinoblastoma Presentation and Analysis by National Income Level

@article{Fabian2020GlobalRP,
  title={Global Retinoblastoma Presentation and Analysis by National Income Level},
  author={I. D. Fabian and E. Abdallah and S. Abdullahi and Rula A Abdulqader and Sahadatou Adamou Boubacar and D. Ademola-Popoola and A. Adio and A. Afshar and P. Aggarwal and A. Aghaji and Alia Ahmad and M. Akib and Lamis Al Harby and M. A. Al Ani and A. Alakbarova and S. A. Portabella and Safaa A F Al-Badri and A. P. Alcasabas and S. Al-Dahmash and Amanda Alejos and E. Alemany-Rubio and Amadou I Alfa Bio and Yvania Alfonso Carreras and Christiane Al-Haddad and Hamoud H Y Al-Hussaini and Amany M Ali and D. B. Alia and M. Al-Jadiry and Usama Al-Jumaly and H. Alkatan and C. All-Eriksson and A. A. R. M. Al-Mafrachi and A. A. Almeida and K. Alsawidi and A. Al-Shaheen and Entissar H Al-Shammary and Primawita O Amiruddin and Romanzo Antonino and Nicholas J Astbury and H. Atalay and L. Atchaneeyasakul and Rose Atsiaya and Taweevat Attaseth and T. H. Aung and S. Ayala and Baglan Baizakova and J. Balaguer and R. Balayeva and W. Balwierz and H. Barranco and C. Bascaran and M. Beck Popovic and R. Benavides and S. Benmiloud and N. Bennani Guebessi and R. Berete and J. Berry and A. Bhaduri and S. Bhat and Shelley J Biddulph and E. Biewald and N. Bobrova and M. Boehme and H. Boldt and M. T. Bonanomi and N. Bornfeld and G. C. Bouda and H. Bouguila and Amaria Boumedane and R. Brennan and B. Brichard and J. Buaboonnam and Patricia Calder{\'o}n-Sotelo and Doris A Calle Jara and J. Camuglia and Miriam R Cano and M. Capra and N. Cassoux and G. Castela and L. Castillo and J. Catal{\'a}-Mora and G. Chantada and Shabana Chaudhry and S. S. Chaugule and Argudit Chauhan and B. Chawla and V. Chernodrinska and F. Chiwanga and Tsengelmaa Chuluunbat and K. Cieślik and R. Cockcroft and C. Comsa and Z. Corr{\^e}a and Maria G Correa Llano and T. Corson and Kristin E Cowan-Lyn and M. Cs{\'o}ka and Xuehao Cui and Isac V Da Gama and Wantanee Dangboon and Anirban Das and Sima Das and Jacquelyn M Davanzo and A. Davidson and P. De Potter and K. Q. Delgado and H. Demirci and L. Desjardins and R. Y. Diaz Coronado and H. Dimaras and A. Dodgshun and C. Donaldson and C. R. D. Donato Macedo and M. Dragomir and Yi Du and M. Du Bruyn and Kemala S Edison and I. W. Eka Sutyawan and A. El Kettani and A. Elbahi and J. Elder and Dina Elgalaly and A. Elhaddad and M. Elhassan and Mahmoud M Elzembely and V. Essuman and Ted Grimbert A Evina and Z. Fadoo and A. Fandi{\~n}o and M. Faranoush and O. Fasina and Delia D P G Fern{\'a}ndez and A. Fernández-Teijeiro and A. Foster and S. Frenkel and Ligia Fu and Soad Fuentes-Alabi and B. Gallie and M. Gandiwa and J. Garc{\'i}a and D. Garc{\'i}a Aldana and P. Gassant and J. Geel and Fariba Ghassemi and A. V. Giron and Zelalem Gizachew and M. A. Goenz and Aaron S. Gold and Maya Goldberg-Lavid and G. Gole and Nir Gomel and Efren Gonzalez and Graciela Gonzalez Perez and L. Gonz{\'a}lez-Rodr{\'i}guez and Henry N Garcia Pacheco and Jaime Graells and Liz Green and Pernille A Gregersen and Nath{\'a}lia Grigorovski and K. Guedenon and D. Gunasekera and A. G{\"u}nd{\"u}z and H. Gupta and Sanjiv Kumar Gupta and T. Hadjistilianou and P. Hamel and S. A. Hamid and N. Hamzah and Eric D. Hansen and J. Harbour and M. Hartnett and M. Hasanreisoğlu and S. Hassan and Shadab Hassan and S. Hederov{\'a} and Jose Hernandez and Lorelay Marie Carcamo Hernandez and L. Hessissen and Diriba F Hordofa and Laura C. Huang and G. Hubbard and Marlies Hummlen and K. Hus{\'a}kov{\'a} and Allawi N Hussein Al-Janabi and Russo Ida and V. Ilic and Vivekaraj Jairaj and I. Jeeva and H. Jenkinson and Xunda Ji and D. Jo and Kenneth P. Johnson and W. J. Johnson and Michael Jones and T. A. Kabesha and R. Kabore and S. Kaliki and Abubakar Kalinaki and M. Kantar and L. Kao and T. Kardava and R. Kebudi and T. Kepak and N. Keren-Froim and Z. J. Khan and H. A. Khaqan and Phara Khauv and Wajiha J. Kheir and V. Khetan and A. Khodabande and Zaza Khotenashvili and Jonathan W Kim and J. H. Kim and H. Kıratlı and T. Kivel{\"a} and A. Klett and Jess Elio Kosh Komba Palet and D. Krivaitienė and M. Kruger and Kittisak Kulvichit and Mayasari W Kuntorini and Alice Kyara and E. S. Lachmann and C. P. Lam and G. Lam and S. Larson and S. Latinovic and Kelly Laurenti and B. H. A. Le and K. Lecuona and Amy A Leverant and Cairui Li and Ben Limbu and Quah Boon Long and J. L{\'o}pez and R. Lukamba and L. Lumbroso and S. Luna-Fineman and Delfitri Lutfi and L. Lysytsia and G. Magrath and A. Mahajan and A. R. Majeed and E. Maka and M. Makan and E. Makimbetov and Chatonda Manda and N. Mart{\'i}n Begu{\'e} and L. Mason and J. Mason and I. Matende and M. Materin and C. Mattosinho and M. Matua and I. Mayet and Freddy B Mbumba and J. McKenzie and A. Medina-Sans{\'o}n and A. Mehrvar and Aemero A Mengesha and V. Menon and G. Mercado and M. Mets and E. Midena and Divyansh K C Mishra and F. G. Mndeme and A. Mohamedani and Mona Mohammad and A. Moll and Margarita Montero and R. A. Morales and C. Moreira and P. Mruthyunjaya and Mchikirwa S Msina and G. Msukwa and S. Mudaliar and K. I. Muma and F. Munier and Gabriela Murgoi and T. Murray and K. Musa and Asma Mushtaq and H. Mustak and Okwen M Muyen and G. Naidu and A. Nair and L. Naumenko and P. N. Ndoye Roth and Y. M. Nency and V. Neroev and H. Ngo and R. Nieves and M. Nikitovi{\'c} and E. Nkanga and H. Nkumbe and Murtuza Nuruddin and M. Nyaywa and Ghislaine Obono-Obiang and N. Oguego and A. Olechowski and S. Oliver and P. Osei-Bonsu and D. Ossand{\'o}n and Manuel A Paez-Escamilla and Halimah Pagarra and S. Painter and Vivian Paintsil and L. Paiva and Bikramjit P. Pal and M. Palanivelu and Ruzanna Papyan and R. Parrozzani and M. Parulekar and Claudia R Pascual Morales and K. Paton and Katarzyna Pawińska-Wa̧sikowska and J. Pe’er and A. Pe{\~n}a and S. Peri{\'c} and C. M. Pham and Remezo Philbert and D. Plager and P. Pochop and R. Polania and V. Polyakov and M. Pompe and J. Pons and D. Prat and Vireak Prom and Ignatius Purwanto and A. Qadir and S. Qayyum and J. Qian and Ardizal Rahman and Salman Rahman and J. Rahmat and Purnima Rajkarnikar and R. Ramanjulu and Aparna Ramasubramanian and M. Ram{\'i}rez-Ortiz and L. Raobela and Riffat Rashid and M. Reddy and Ehud Reich and L. Renner and D. Reynders and Dahiru Ribadu and Mussagy M Riheia and P. Ritter-Sovinz and Duangnate Rojanaporn and L. Romero and S. Roy and R. Saab and S. Saakyan and A. Sabhan and M. Sagoo and Azza M A Said and R. Saiju and Beatriz Salas and Sonsoles San Rom{\'a}n Pacheco and Gissela L S{\'a}nchez and Phayvanh Sayalith and T. Scanlan and A. Schefler and J. Schoeman and Ahad Sedaghat and S. Seregard and R. Seth and Ankoor Shah and Shawkat A Shakoor and M. Sharma and Sadik T. Sherief and N. Shetye and C. Shields and S. Siddiqui and Sidi Sidi Cheikh and S. Silva and Arun D. Singh and Niharika Singh and U. Singh and P. Singha and R. Sitorus and Alison H Skalet and H. D. Soebagjo and T. Sorochynska and Grace Ssali and A. Stacey and S. Staffieri and E. Stahl and C. Stathopoulos and B. Stirn Kranjc and D. Stones and C. Strahlendorf and Maria Estela Coleoni Suarez and S. Sultana and Xiantao Sun and Meryl Sundy and R. Superstein and E. Supriyadi and Supawan Surukrattanaskul and Shigenobu Suzuki and K. Svojgr and F. Sylla and G. Tamamyan and D. Tan and Alketa Tandili and Fanny F Tarrillo Leiva and M. Tashvighi and Bekim Tateshi and E. Tehuteru and L. Teixeira and K. Teh and Tuyisabe Theophile and H. Toledano and D. L. Trang and F. Traor{\'e} and S. Trichaiyaporn and S. Tuncer and Harba Tyau-Tyau and A. Umar and E. Unal and Ogul E. Uner and S. F. Urbak and T. Ushakova and R. Usmanov and Sandra Valeina and M. van Hoefen Wijsard and A. Varadisai and Liliana V{\'a}squez and Leon O Vaughan and Nevyana V Veleva-Krasteva and N. Verma and A. A. Victor and Maris Viksnins and Edwin G Villac{\'i}s Chafla and V. Vishnevskia-Dai and T. Vora and A. Wachtel and W. Wackernagel and K. Waddell and P. Wade and Amina H Wali and Yizhuo Wang and A. Weiss and M. Wilson and Amelia D C Wime and A. Wiwatwongwana and D. Wiwatwongwana and Charlotte Wolley Dod and Phanthipha Wongwai and Daoman Xiang and Yishuang Xiao and J. C. Yam and Huasheng Yang and Jenny M Yanga and M. A. Yaqub and V. Yarovaya and A. Yarovoy and H. Ye and Y. Yousef and P. Yuliawati and Arturo M Zapata L{\'o}pez and Ekhtelbenina Zein and C. Zhang and Y. Zhang and J. Zhao and Xiao-Yu Zheng and Katsiaryna Zhilyaeva and N. Zia and Othman A O Ziko and M. Zondervan and R. Bowman},
  journal={JAMA Oncology},
  year={2020},
  volume={6},
  pages={1 - 12}
}
This cross-sectional analysis reports the retinoblastoma stage at diagnosis across the world during a single year, investigates associations between clinical variables and national income level, and investigates risk factors for advanced disease at diagnosis. 
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This international, multicenter, registry-based analysis of RB management revealed that lower national income levels were associated with significantly higher rates of metastasis-related mortality, local treatment failure and lower globe salvage. Expand
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No proof of sex predilection in retinoblastoma was found in the present study, and a high male to female ratio in Asian countries, India in specific, which may have had an impact on global-level analysis is likely due to gender discrimination in access to care in these countries, rather than a biological difference between sexes. Expand
International travel to obtain medical treatment for primary retinoblastoma: A global cohort study
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The way services are delivered in the light of the threat of severe curtailment of international travel from pandemics like corona virus disease 2019 may need to rethink the way they are delivered. Expand
Challenge of Retinoblastoma in Mexico in 2020: Perspectives and Solutions
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The present review explores the previously mentioned factors in Mexico and compares them to other countries and recommends solutions or enhancements where possible. Expand
Treatment Outcome of Children with Retinoblastoma in a Tertiary Care Referral Hospital in Indonesia
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Treatment outcome of Indonesian children diagnosed with retinoblastoma is determined and factors predictive of treatment outcome are explored to explore factors contributing to RB survival in these latter settings. Expand
Travel burden and clinical presentation of retinoblastoma: analysis of 1024 patients from 43 African countries and 518 patients from 40 European countries
TLDR
Fewer than half the expected number of patients with retinoblastoma presented to African referral centres in 2017, suggesting poor awareness or other barriers to access, despite the relatively shorter distance travelled by African patients, they presented with later-stage disease. Expand
A ten-year study of Retinoblastoma in Uganda: An approach to improving outcome with limited resources.
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Many children in Uganda present with advanced Retinoblastoma and curative treatment is not possible in this setting, so retention of sight among many bilaterally affected children is achievable, facilitating access to normal education. Expand
Commentary: Retinoblastoma management—Where are we and where do we go from here?
TLDR
All the contemporary treatment modalities listed in the article are available to Indian retinoblastoma patients, albeit in select centers across the country. Expand
A Multicenter, International Collaborative Study for AJCC-Staging of Retinoblastoma: Treatment Success and Globe Salvage.
TLDR
Multicenter, international, internet-based data sharing validated the 8th edition AJCC RB staging to predict globe-salvage in a large, real life, heterogenous, real-world retinoblastoma patient population. Expand
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