Genetic counseling and risk communication services of newborn screening programs.

@article{Farrell2001GeneticCA,
  title={Genetic counseling and risk communication services of newborn screening programs.},
  author={Michael H. Farrell and Laura K Certain and Philip S. E. Farrell},
  journal={Archives of pediatrics & adolescent medicine},
  year={2001},
  volume={155 2},
  pages={120-6}
}
OBJECTIVES Newborn screening test results labeled "positive" can have uncertain implications for parents, especially when false-positive results occur or when heterozygous infants are detected using molecular tests for sickle cell hemoglobinopathy or cystic fibrosis. This study surveyed communication services across state newborn screening programs. METHODS We surveyed newborn screening programs to identify current communication practices and the methods used for quality assessment. Two… CONTINUE READING