Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study

@inproceedings{Gipson2013GainingTP,
  title={Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study},
  author={Debbie S. Gipson and David T. Selewski and Susan F. Massengill and Larysa T Wickman and Kassandra L. Messer and Emily G Herreshoff and Corinna Bowers and Maria E. Ferris and John D. Mahan and Larry A. Greenbaum and Jacqueline MacHardy and Gaurav Kapur and Deepa H. Chand and Jens W D Goebel and Gina Marie Barletta and Denis F. Geary and David B. Kershaw and Cynthia G. Pan and Rasheed A Gbadegesin and Guillermo S{\'a}nchez-Archidona Hidalgo and Jerome Charles Lane and Jeffrey D. Leiser and Brett W Plattner and Peter X-K Song and David M Thissen and Yang Liu and Heather E. Gross and Darren A. DeWalt},
  booktitle={Health and quality of life outcomes},
  year={2013}
}
Background and objectivesNephrotic syndrome (NS) represents a common disease in pediatric nephrology typified by a relapsing and remitting course and characterized by the presence of edema that can significantly affect the health-related quality of life in children and adolescents. The PROMIS pediatric measures were constructed to be publically available, efficient, precise, and valid across a variety of diseases to assess patient reports of symptoms and quality of life. This study was designed… CONTINUE READING
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