From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): experiences of people with ALS/MND and family carers - a qualitative study.

@article{OBrien2011FromSO,
  title={From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): experiences of people with ALS/MND and family carers - a qualitative study.},
  author={Mary R O'Brien and Bridget A. Whitehead and Barbara A. Jack and John Douglas Mitchell},
  journal={Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases},
  year={2011},
  volume={12 2},
  pages={97-104}
}
Our objectives were to explore the personal perspectives of the diagnostic experience for people with ALS/MND and their family carers identifying issues that could impact positively or negatively on these experiences. We conducted a qualitative study with face-to-face interviews to capture experiences from 24 people with ALS/MND and 18 current family carers. Ten former family carers were also interviewed. The diagnostic experience was fraught with difficulties. There was failure to recognize… CONTINUE READING

Citations

Publications citing this paper.
Showing 1-10 of 23 extracted citations

References

Publications referenced by this paper.
Showing 1-10 of 48 references

Diagnostic problems and 7 . delay in amyotrophic lateral sclerosis

M Kraemer, M Bueger, P Belit
Clin Neurol Neurosurg • 2010

Identifying poor adaptation to a new diagnosis of motor neuron disease: A pilot study into the value of an early patient-led interview.

Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases • 2010

Public awareness of motor neuron disease.

Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases • 2010

Timelines in the diagnostic evaluation of people with suspected amyotrophic lateral sclerosis (ALS)/motor neuron disease (MND)--a 20-year review: can we do better?

Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases • 2010

disease (Letter to the Editor) Amyotroph Lateral Scler

JD Mitchell, P Callagher, J Gardham, C Mitchell, M Dixon
2010
View 2 Excerpts

ing poor adaptation to a new diagnosis of motor neuron disease. A pilot study into the value of an early patient-led interview. Amyotroph Lateral Scler

DF Polit, CT Beck
2010
View 1 Excerpt

Eval - 33 . uating a fast - track service for diagnosing MND / ALS against traditional pathways

P Callagher, JD Mitchell, W Bennett, R Addison-Jones
British Journal of Neuroscience Nurs • 2009

differentiating and referring the ALS patient

M Kraemer, M Bueger, P. Belit
Ann Neurol. 2009;65:S10 • 2009

uating a fast-track service for diagnosing MND/ALS against traditional pathways

K Beaver, K Luker, S. Woods
British Journal of Neuroscience Nurs- ing • 2009
View 1 Excerpt

Similar Papers

Loading similar papers…