From genetic privacy to open consent

  title={From genetic privacy to open consent},
  author={Jeantine Lunshof and Ruth F Chadwick and Daniel B. Vorhaus and George M. Church},
  journal={Nature Reviews Genetics},
Recent advances in high-throughput genomic technologies are showing concrete results in the form of an increasing number of genome-wide association studies and in the publication of comprehensive individual genome–phenome data sets. As a consequence of this flood of information the established concepts of research ethics are stretched to their limits, and issues of privacy, confidentiality and consent for research are being re-examined. Here, we show the feasibility of the co-development of… CONTINUE READING
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