From Principles to Process in Disorders of Sex Development Care

  title={From Principles to Process in Disorders of Sex Development Care},
  author={Alice Domurat Dreger and David E. Sandberg and Ellen K. Feder},
  journal={Hormone Research in Paediatrics},
  pages={419 - 420}
the DSD consensus [2] – that makes possible such good decision-making remains elusive. Further, providers caring for patients with these rare conditions, at least in North America, are not contributing to patient registries that collect the evidence needed for meaningful informed consent. They do not engage qualified psychosocial clinical professionals who can help families manage the ongoing challenges of life outside the hospital. They do not have systems in which parents’ distress, confusion… Expand
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