Family caregiver perspectives on symptoms and treatments for patients dying from complications of cystic fibrosis.


CONTEXT Most patients with advanced cystic fibrosis (CF) die from respiratory failure and experience distressing symptoms as lung disease progresses. Little has been reported about symptom management and the continuation of disease-specific treatments near the end of life for patients with CF. OBJECTIVE We aimed to describe symptom prevalence, symptom… (More)
DOI: 10.1016/j.jpainsymman.2010.03.024


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