Familial hypercholesterolaemia: a pilot study of parents' and children's concerns.

@article{Tonstad1996FamilialHA,
  title={Familial hypercholesterolaemia: a pilot study of parents' and children's concerns.},
  author={Serena Tonstad},
  journal={Acta paediatrica},
  year={1996},
  volume={85 11},
  pages={1307-13}
}
OBJECTIVE To assess psychosocial concerns of families with familial hypercholesterolaemia. METHODS One-hundred-and-fifty-four single or pairs of parents of children age 6 - 16 years responded to a specifically designed questionnaire. One child from each family was interviewed. RESULTS Eleven percent of parents thought that their quality of life would have been better had they not known about the disease. None agreed totally that they wished the diagnosis had not been made. However, 20… CONTINUE READING
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