Facilitating Self-reflection about Values and Self-care Among Individuals with Chronic Conditions
@article{Lim2019FacilitatingSA, title={Facilitating Self-reflection about Values and Self-care Among Individuals with Chronic Conditions}, author={Catherine Y. Lim and Andrew B. L. Berry and Andrea L. Hartzler and Tad Hirsch and David S. Carrell and Zo{\"e} A. Bermet and James D. Ralston}, journal={Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems}, year={2019} }
Individuals with multiple chronic conditions (MCC) experience the overwhelming burden of treating MCC and frequently disagree with their providers on priorities for care. Aligning self-care with patients' values may improve healthcare for these patients. However, patients' values are not routinely discussed in clinical conversations and patients may not actively share this information with providers. In a qualitative field study, we interviewed 15 patients in their homes to investigate…
24 Citations
Supporting Collaborative Reflection on Personal Values and Health
- PsychologyProc. ACM Hum. Comput. Interact.
- 2021
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- 2023
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Aligning Care with the Personal Values of Patients with Complex Care Needs.
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- 2021
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- 2021
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Managing healthcare conflicts when living with multiple chronic conditions
- MedicineInt. J. Hum. Comput. Stud.
- 2021
Divided We Stand
- MedicineProc. ACM Hum. Comput. Interact.
- 2020
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- MedicineJournal of medical Internet research
- 2021
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ProACT - A Digital Platform to Support Self-Management of Multiple Chronic Conditions: Findings in Relation to Engagement during a one-year Proof-of-Concept Trial (Preprint)
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- 2020
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Reflection in Theory and Reflection in Practice: An Exploration of the Gaps in Reflection Support among Personal Informatics Apps
- PhysicsCHI
- 2022
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- 2022
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46 References
Creating Conditions for Patients' Values to Emerge in Clinical Conversations: Perspectives of Health Care Team Members
- MedicineConference on Designing Interactive Systems
- 2017
A practice-based account of ways in which providers engage with patient values is contributed, and how future work in interactive systems design might extend and enrich these engagements is discussed.
"It just seems outside my health": How Patients with Chronic Conditions Perceive Communication Boundaries with Providers
- MedicineConference on Designing Interactive Systems
- 2016
It is found that patients withhold information from providers when communicating about what they deem important to their health and well-being, and limitations of existing approaches to support patient-provider communication are revealed.
Understanding What Is Most Important to Individuals with Multiple Chronic Conditions: A Qualitative Study of Patients’ Perspectives
- Medicine, PsychologyJournal of General Internal Medicine
- 2017
The domains describe the range and types of personal values multimorbid older adults deem important to well-being and health may be useful for providers when developing, sharing, and following up on care plans.
Eliciting Values of Patients with Multiple Chronic Conditions: Evaluation of a Patient-centered Framework
- MedicineAMIA
- 2017
It is found that respondents frame values in a way that is consistent with the framework, and that domains of the framework can be used to elicit a breadth of potential values individuals with MCC express.
"It's good to know you're not a stranger every time"
- Medicine, Political ScienceProc. ACM Hum. Comput. Interact.
- 2017
To address an evidence gap regarding how discussions about values occur in clinical settings, a field study with patients with multiple chronic conditions and their health care providers finds the extent to which certain categories of patients' values were discussed in clinic visits was reported.
Self-Care Technologies and Collaboration
- Psychology, MedicineInt. J. Hum. Comput. Interact.
- 2015
A case study of people living with Parkinson’s disease is used to illustrate how patients and carers collaborate in self-management, discuss the reasons why self-care technology is designed for individual use, and explore the implications of recognizing collaborations for the design ofSelf-care technologies.
How Values Shape Collaboration Between Patients with Multiple Chronic Conditions and Spousal Caregivers
- PsychologyCHI
- 2017
Individuals with multiple chronic conditions (MCC) collaborate with spousal caregivers daily to pursue what is most important to their health and well-being. Previous research in human-computer…
Descriptions of Barriers to Self-Care by Persons with Comorbid Chronic Diseases
- Medicine, PsychologyThe Annals of Family Medicine
- 2003
Persons with comorbid chronic diseases experience a wide range of barriers to self-care, including several that are specifically related to having multiple medical conditions.
MAHI: investigation of social scaffolding for reflective thinking in diabetes management
- MedicineCHI
- 2008
The deployment study with twenty five newly diagnosed individuals with diabetes demonstrated that MAHI significantly contributed to individuals' achievement of their diabetes management goals (changing diet) and inspired individuals to adopt Internal Locus of Control, which often leads to persistent engagement in self-care and positive health outcomes.
Take it personally: accounting for individual difference in designing diabetes management systems
- MedicineConference on Designing Interactive Systems
- 2010
The analysis suggests that individual diabetes patients have a unique way of managing their care through the interpretation of personal health experiences, and calls for a diabetes management system that addresses a patient's physiological, social and psychological activities within the process of individual disease management.