Ethical considerations in the management of amyotrophic lateral sclerosis

  title={Ethical considerations in the management of amyotrophic lateral sclerosis},
  author={A. Eisen and Charles Krieger},
  journal={Progress in Neurobiology},

The wish to die and hastening death in amyotrophic lateral sclerosis: A scoping review

The scope of literature on the wish to die in ALS is examined to provide an insight into determinants and motives for different end-of-life options and investigate the reasons, meaning and strength of the desire to die to detect unmet needs.

Effects of noninvasive ventilation in amyotrophic lateral sclerosis: The complication of bulbar impairment

Noninvasive ventilation’s benefits on survival were limited to patients with less bulbar impairment, and several limitations that undermine the efforts to establish a definitive treatment regimen were found.

The full spectrum of ethical issues in the care of patients with ALS: a systematic qualitative review

The systematically derived spectrum of ethical issues in ALS care presented in this paper raises awareness and understanding of the complexity of ethical concerns and offers a basis for the systematic development of informational and training materials for health professionals, patients and their relatives, and society as a whole.

Amiotrofična lateralna skleroza Amyotrophic lateral sclerosis

The diagnosis of ALS is based on clinical features, electro-diagnostic testing, and exclusion of conditions that can mimic ALS, and Riluzole remains the only effective drug, and extends the average survival by 3 months.

Amiotrofična lateralna skleroza

The diagnosis of ALS is based on clinical features, electro-diagnostic testing, and exclusion of conditions that can mimic ALS, and Riluzole remains the only effective drug, and extends the average survival by 3 months.

Brain–computer interfaces in amyotrophic lateral sclerosis: A metanalysis

Hot Topics in Noninvasive Ventilation: Report of a Working Group at the International Symposium on Sleep-Disordered Breathing in Leuven, Belgium

This session discussed NIV in amyotrophic lateral sclerosis, when to start NIV, NIV and sleep, secretion management, and what to do when NIV fails, and recent and future developments in NIV.

Ethische Fragen bei neurodegenerativen Erkrankungen

Die Behandlung von Patienten mit neurodegenerativen Erkrankungen wirft etliche ethische Fragen auf, die am Beispiel der amyotrophen Lateralsklerose diskutiert werden. Bereits aus Verzogerungen der



Palliative care for patients with amyotrophic lateral sclerosis: "prepare for the worst and hope for the best".

Presenting the unusual case of a patient with ALS who is also a prominent neurologist specializing in ALS, issues in management and palliative care applicable to ALS but also to other fatal, progressive neurologic diseases such as Huntington's chorea and late-stage Parkinson disease are listed.

Amyotrophic Lateral Sclerosis: ethical issues from diagnosis to end of life.

Clinicians caring for ALS patients should appreciate and communicate the significance of life threatening symptoms, monitor capacity for decision making, anticipate and manage multiple possible end of life scenarios, and aggressively manage symptoms.

Amyotrophic Lateral Sclerosis

In this fictional case, ethical dilemmas from several actual cases have been combined to illustrate ethical challenges that may be encountered in the care of a patient with amyotrophic lateral sclerosis.

EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives

Early diagnosis should be pursued and a number of investigations should be performed with high priority, and every effort should be made to maintain patient autonomy during the entire course of the disease.

Breaking the news in amyotrophic lateral sclerosis.

It is believed that the terminal phase of the disease should be discussed at the latest when dyspneic symptoms appear, in order to prevent unwarranted fears of 'choking to death'.

Breaking the news in amyotrophic lateral sclerosis

Amyotrophic Lateral Sclerosis and Physician Assisted Suicide

  • S. Baumrucker
  • Medicine
    The American journal of hospice & palliative care
  • 2006
It is argued that the physician should have, in essence, talked Mr P out of getting a tracheostomy by describing the likely scenarios that may arise, including the case described here.

Withdrawal of invasive home mechanical ventilation in patients with advanced amyotrophic lateral sclerosis: ten years of Danish experience.

Patients' requests for the withdrawal of IHMV in advanced stage ALS was related to a perceived "loss of meaning in life." Termination of treatment was performed under deep sedation as a medically, legally, and ethically justified procedure.

Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Drug, nutritional, and respiratory therapies (an evidence-based review)

More studies are needed to examine the best tests of respiratory function in ALS, as well as the optimal time for starting PEG, the impact of PEG on quality of life and survival, and the effect of vitamins and supplements on ALS.