Ethical Principles: An Essential Part of the Process in Disorders of Sex Development Care

@article{Gillam2011EthicalPA,
  title={Ethical Principles: An Essential Part of the Process in Disorders of Sex Development Care},
  author={Lynn Gillam and Jacqueline K Hewitt and Garry L. Warne},
  journal={Hormone Research in Paediatrics},
  year={2011},
  volume={76},
  pages={367 - 368}
}
child. All of these decisions are ethically important, as they all have significant, far-reaching consequences for the infant. The issue is not whether a particular type of decision happens to be controversial at a particular time; it is about making sound, ethically appropriate and justifiable decisions for every patient. That having been said, it is worthwhile to note that issues over genital surgery have not gone away [3] . There is still considerable difference in opinion and practice… Expand
8 Citations
Ethical Principles for the Management of Children with Disorders of Sex Development: A Systematic Approach for Individual Cases
The Fifth World Congress on Family Law and Children’s Rights (Halifax Resolutions, http://www.lawrights.asn.au/index.php?option=com_content&view=article&id=76&Itemid=109, August 2009) adopted aExpand
Ethical Principles for the Management of DSD
The Fifth World Congress on Family Law and Children’s Rights (“Halifax Resolutions” (2009) from http://www.lawrights.asn.au/index.php?option=com_content&view=article&id=76&Itemid=109) adopted aExpand
Advice on the management of ambiguous genitalia to a young endocrinologist from experienced clinicians.
TLDR
In most instances, there is sufficient follow-up data so that making the diagnosis also establishes the appropriate gender assignment (infants with congenital adrenal hyperplasia, those with androgen resistance syndromes), but some causes of DSD such as steroid 5α-reductase 2 deficiency and 17β-hydroxysteroid dehydrogenase deficiency are associated with frequent change in social sex later in life. Expand
Management of disorders of sex development
TLDR
The inclusion of trained peer support in the multidisciplinary DSD team seems to be integral to the supportive management of patients with DSDs, which requires acceptance of the fact that deviation from the traditional definitions of gender is not necessarily pathologic. Expand
A Noncategorical Approach to the Psychosocial Care of Persons with DSD and Their Families
The 2006 Consensus Statement on Management of Intersex Disorders incorporated all variations in sex development under one superordinate term, disorders of sex development (DSD), and called for careExpand
Hormone replacement in disorders of sex development: Current thinking.
TLDR
Diagnostic criteria for different DSDs, clinical considerations in management protocols, together with current concepts and detailed practical hormone treatments for male and female individuals with DSD are described. Expand
Normal and Variant Sex Development
Abstract Sex development is the biological pathway for any species to allow reproduction and therefore survival over generations. This has led to highly complex arrangements during evolution to allowExpand
Disorders of Sex Development
TLDR
After morphological and molecular assessment is complete a management plan is developed by a multidisciplinary team in the tertiary and/or quaternary referral centre. Expand

References

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Ethical Principles for the Management of Infants with Disorders of Sex Development
TLDR
The ethical principles developed by the Halifax Resolution group were formulated by an analytic review of clinician reasoning in particular cases in relation to established principles of bioethics in a process consistent with the Rawlsian concept of reflective equilibrium as the method for building ethical theory. Expand
From Principles to Process in Disorders of Sex Development Care
TLDR
The authors have opted to ignore the existing DSD ethics literature in an effort to arrive at principles putatively unburdened by previous ethical engagement, and used a dialogue between an ethicist and two clinicians to articulate their proposed principles. Expand
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TLDR
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Clinical practice guidelines for congenital adrenal hyperplasia (CAH) recommend universal newborn screening for severe steroid 21-hydroxylase deficiency followed by confirmatory tests and recommend judicious use of medication during pregnancy and in symptomatic patients with nonclassic CAH. Expand
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In ethics, the use of empirical data has become more and more popular, leading to a distinct form of applied ethics, namely empirical ethics. This ‘empirical turn’ is especially visible in bioethics.Expand
Reflective Equilibrium and Empirical Data: Third Person Moral Experiences in Empirical Medical Ethics
TLDR
Examples taken from the research project on understanding the norm of informed consent in the field of pediatric oncology show that incorporation of empirical data in a network model can reduce the risk of self-justification and bias and can increase the credibility of the RE reached. Expand
Reproduced with the permission of Bird life Australia and
Medium-sized to large aquatic, marine and terrestrial birds. Three families: (1) Anhimidae (screamers), (2) Anseranatidae (Magpie Goose) and (3) Anatidae (true wildfowl); Screamers confined to SouthExpand