Essential requirements for establishing and operating data trusts: practical guidance co-developed by representatives from fifteen canadian organizations and initiatives

  title={Essential requirements for establishing and operating data trusts: practical guidance co-developed by representatives from fifteen canadian organizations and initiatives},
  author={P. A. Paprica and E. Sutherland and A. Smith and M. Brudno and Rosario G. Cartagena and Monique Crichlow and Brian K Courtney and C. Loken and K. McGrail and Alex Ryan and M. Schull and A. Thorogood and C. Virtanen and Kathleen Yang},
  journal={International Journal of Population Data Science},
Abstract Introduction Increasingly, the label “data trust” is being applied to repeatable mechanisms or approaches to sharing data in a timely, fair, safe, and equitable way. However, there is an absence of practical guidance regarding how to establish and operate a data trust. Aim and approach In December 2019, the Canadian Institute for Health Information and the Vector Institute for Artificial Intelligence convened a working meeting of 19 people representing 15 Canadian organizations… Expand
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