Epilepsy stigma: Moving from a global problem to global solutions

  title={Epilepsy stigma: Moving from a global problem to global solutions},
  author={Hanneke M. de Boer},
  • H. Boer
  • Published 1 December 2010
  • Psychology
  • Seizure

Double stigma in mental health: epilepsy and mental illness

Government and policymakers as well as health services, patients’ organisations, families and the general public need to be aware of the phenomenon of double stigma in mental health with special reference to epilepsy in order to develop campaigns and interventions tailored for patients.

Stigma in Epilepsy and How to Combat It

Increasing knowledge about epilepsy by raising awareness and educating about the disorder is a significant factor toward eradicating epilepsy-related stigma.

The Effects of Perceived Stigma on the Concealment of Disease and Satisfaction with Life in Patients with Epilepsy: An Example in Eastern Turkey

It was found that the patients with epilepsy living in the east of Turkey had high levels of perceived stigma and concealment of epilepsy and low satisfaction with life levels, and the patients concealed their disease for fear of stigma, which negatively affected their satisfaction withlife.

Epilepsy: A Stigma More than Disease

Epilepsy is a common neurological disorder that occurs from ancient times and accompanying with convulsions or seizures and is considered as a neurodevelopmental disorder which has reduced the life expectancy and associated with various stigmatized attitudes or beliefs.

A systematic review protocol of stigma among children and adolescents with epilepsy

Findings from this review will document the burden of stigma of epilepsy and the common contributing factors, which will form the building blocks of interventions that address this health challenge.

Lives of Women with Seizures in Malabar, South India

The lives of women living with epilepsy in the outskirts of Kozhikode district in the Malabar Coast of Kerala, South India, where the epilepsy treatment gap is extensive are described to lay the foundation for future qualitative and quantitative research studies and for developing culturally appropriate interventions.

Just In Time

It is found that these participants feel that most people do not know how to deal with seizures, and design implications of future technologies for effective delivery of appropriate first aid care information to bystanders around individuals with epilepsy when they experience a seizure are proposed.

The impact of epilepsy on patients' lives

  • M. Kerr
  • Medicine, Psychology
    Acta neurologica Scandinavica. Supplementum
  • 2012
Successful management of epilepsy requires a holistic approach to care, with treatment tailored to the individual patient's needs, and this can only be achieved through effective doctor–patient communication and the full involvement of a multidisciplinary care team.



Epilepsy and social identity: the stigma of a chronic neurological disorder

Epilepsy care in a non-clinical setting. A medical-anthropological study among the Bassa and Kpelle in the rainforest of Liberia, West Africa.

  • C. Gerrits
  • Medicine, Psychology
    Tropical and geographical medicine
  • 1994
The medical-anthropological context of epilepsy among the Bassa and Kpelle in isolated rural areas in the tropical rainforest in Liberia is outlined, and an epilepsy care project is established within the limits of culture and human possibilities.

Stigma and global health: developing a research agenda

[The history of epilepsy in the Dutch Journal of Medicine].

During the last century the development of new diagnostic techniques led to rapid changes in reasoning and it quickly became possible to distinguish different types of epilepsy according to their causes and clinical manifestations.

Epilepsy in the WHO European region: Fostering epilepsy care in Europe

  • J. Cross
  • Medicine, Psychology
  • 2011
The Executive Committee is exploring ways to augment our interactions with all our partners, including corporations. The aim is to take on a significant major initiative that would impact epilepsy

Evil in the body, disorder of the brain. Interpretations of epilepsy and the treatment gap in Swaziland.

  • R. Reis
  • Psychology
    Tropical and geographical medicine
  • 1994
It is argued that to improve compliance, the classical image of a scar in the brain may be used to bridge the gap between traditional and modem medical concepts, and Hahn's variation of the illness-disease dichotomy is used.

Kentuckians' Attitudes Toward Children with Epilepsy

Kentuckians' attitudes toward children with epilepsy are explored, and data do not support contentions that prejudices against persons with epilepsy is disappearing.

Epilepsy and Persian Culture: An Overview

The manner in which Persian culture viewed the problem of epilepsy is reviewed, Beginning with the Avesta, the earliest Persian text on health and sickness, the medical literature on treatments of epilepsy common in Iran are reviewed.

The Treatment of Epilepsy: Principles and Practice

PART I: PATHOLOGIC SUBSTRATES AND MECHANISMS OF EPILEPTOGENESIS Section A: Cellular Aspects of Epileptogenesis Section B: Neurodevelopment and Pathological Substrates of Epilepsy Section C: Genetics