Epilepsy stigma: Moving from a global problem to global solutions

@article{Boer2010EpilepsySM,
  title={Epilepsy stigma: Moving from a global problem to global solutions},
  author={Hanneke M. de Boer},
  journal={Seizure},
  year={2010},
  volume={19},
  pages={630-636}
}
  • H. Boer
  • Published 1 December 2010
  • Psychology
  • Seizure

Double stigma in mental health: epilepsy and mental illness

TLDR
Government and policymakers as well as health services, patients’ organisations, families and the general public need to be aware of the phenomenon of double stigma in mental health with special reference to epilepsy in order to develop campaigns and interventions tailored for patients.

Stigma in Epilepsy and How to Combat It

TLDR
Increasing knowledge about epilepsy by raising awareness and educating about the disorder is a significant factor toward eradicating epilepsy-related stigma.

The Effects of Perceived Stigma on the Concealment of Disease and Satisfaction with Life in Patients with Epilepsy: An Example in Eastern Turkey

TLDR
It was found that the patients with epilepsy living in the east of Turkey had high levels of perceived stigma and concealment of epilepsy and low satisfaction with life levels, and the patients concealed their disease for fear of stigma, which negatively affected their satisfaction withlife.

Epilepsy: A Stigma More than Disease

TLDR
Epilepsy is a common neurological disorder that occurs from ancient times and accompanying with convulsions or seizures and is considered as a neurodevelopmental disorder which has reduced the life expectancy and associated with various stigmatized attitudes or beliefs.

A systematic review protocol of stigma among children and adolescents with epilepsy

TLDR
Findings from this review will document the burden of stigma of epilepsy and the common contributing factors, which will form the building blocks of interventions that address this health challenge.

Lives of Women with Seizures in Malabar, South India

TLDR
The lives of women living with epilepsy in the outskirts of Kozhikode district in the Malabar Coast of Kerala, South India, where the epilepsy treatment gap is extensive are described to lay the foundation for future qualitative and quantitative research studies and for developing culturally appropriate interventions.

Just In Time

TLDR
It is found that these participants feel that most people do not know how to deal with seizures, and design implications of future technologies for effective delivery of appropriate first aid care information to bystanders around individuals with epilepsy when they experience a seizure are proposed.

The impact of epilepsy on patients' lives

  • M. Kerr
  • Medicine, Psychology
    Acta neurologica Scandinavica. Supplementum
  • 2012
TLDR
Successful management of epilepsy requires a holistic approach to care, with treatment tailored to the individual patient's needs, and this can only be achieved through effective doctor–patient communication and the full involvement of a multidisciplinary care team.
...

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PART I: PATHOLOGIC SUBSTRATES AND MECHANISMS OF EPILEPTOGENESIS Section A: Cellular Aspects of Epileptogenesis Section B: Neurodevelopment and Pathological Substrates of Epilepsy Section C: Genetics