Empathy, participatory design and people with dementia

@article{Lindsay2012EmpathyPD,
  title={Empathy, participatory design and people with dementia},
  author={Stephen Lindsay and Katie Brittain and Daniel Jackson and Cassim Ladha and Karim Ladha and Patrick Olivier},
  journal={Proceedings of the SIGCHI Conference on Human Factors in Computing Systems},
  year={2012}
}
We describe the development, application and evaluation of a design method tailored for working with people with mild to moderate dementia. Our experiences with the approach highlighted areas where designers and participants held radically different views. The tenet of our approach was that to overcome these differences we needed to create an empathic relationship between participants and designers. To achieve this we modified participatory design techniques to foster respectful engagement with… 

Figures and Tables from this paper

DemYouth: Co-Designing and Enacting Tools to Support Young People's Engagement with People with Dementia
TLDR
A qualitative study based on a series of 6 co-design workshops conducted with 14 young people who had personal experience with dementia, highlighting the young people's desire to be more involved in their family discussions around dementia and a need for them to find new ways to connect with their loved ones with dementia.
Engaging people with dementia in designing playful and creative practices: Co-design or co-creation?
TLDR
It is argued that such interaction is better described as co-creation and that this definition can still embrace considerable contribution and involvement by people with dementia in a co-design process.
Personalised participation: an approach to involve people with dementia and their families in a participatory design project
Abstract This paper presents a personalised approach to participatory design, where several aspects of the project, such as brief, process and artefacts, are left open to be redefined by the
Designing with Dementia: Guidelines for Participatory Design together with Persons with Dementia
TLDR
Traditional participatory design methods are not fully appropriate to incorporate persons with dementia as they assume that the participants are cognitively able; can make use of visual and hands-on techniques; or require a high level of abstraction ability of the person with dementia.
Applying participatory design with dementia stakeholders: Challenges and lessons learned from two projects
TLDR
The experience applying participatory design in a design project with PWD and another with CPWD is presented, and lessons learned using PD methods with P WD and CPWD are described.
Designing Sentic: Participatory Design with People Living with Dementia
TLDR
The design process of Sentic, a music player with an interface that can be tailored to fit its users’ needs is presented, which shows the potential of tailoring interactions so that they support and maintain autonomy and facilitate personal access to technology, for people with dementia.
Engaging older people with participatory design
We present a design case focusing on participatory design (PD) with older people. We experimented with PD techniques to foster engagement with participants in development of a graphical user
Student Engagement in Sensitive Design Contexts: A Case Study in Dementia Care
TLDR
This paper presents two case- studies of co-design projects between students and people with dementia and details the use of design methods to reconfigure the role of the residents in care contexts and the students learning process.
Engaging older people using participatory design
TLDR
An approach to early engagement in design with older people that addresses four central issues that participatory design approaches need to address, based on previous work and the own experiences.
Getting Closer, Empathising and Understanding: Setting the Stage for a Co-design Project with People with Dementia
TLDR
The initial work of a doctoral research project that explores how communication design can enable people with dementia and their social circle to codesign strategies to communicate is discussed, and its process deconstructed is described.
...
1
2
3
4
5
...

References

SHOWING 1-10 OF 44 REFERENCES
Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence
TLDR
The study showed that involving people with dementia in the process of participatory design is feasible and could lead to devices which are more acceptable and relevant to their needs.
Participatory design of an orientation aid for amnesics
TLDR
The findings suggest that the OrientingTool can improve an amnesic's independence and confidence in managing situations when disoriented, and that participatory design may be productively used with participants who have significant cognitive disabilities.
Empathy and experience in HCI
TLDR
'empathy' is used to help position some emerging design and user-experience methodologies in terms of dynamically shifting relationships between designers, users, and artefacts.
Technological opportunities for supporting people with dementia who are living at home
Running focus groups with elderly and disabled elderly participants.
Designing interactive life story multimedia for a family affected by alzheimer's disease: a case study
TLDR
The goal is to contribute insight into designing for users with cognitive disabilities, and to present methodologies that are useful for designers who have a limited ability to interact or communicate with end users.
User-led design of technology to improve quality of life for people with dementia
TLDR
This project reflected the need to address quality of life issues more directly through the design of appropriate technology as well as improving the safety and security of people with dementia.
Designing Inclusive Futures
Designing Inclusive Futures reflects the need to explore, in a coherent way, the issues and practicalities that lie behind design that is intended to extend our active future lives. This encompasses
Catalyzing social interaction with ubiquitous computing: a needs assessment of elders coping with cognitive decline
TLDR
Design directions for ubiquitous computing to facilitate social interaction are described, focusing on elders coping with cognitive decline and their caregivers, but it is expected that the concepts will have much broader applicability.
BRIDGING THE GAP BETWEEN YOUNG DESIGNERS AND OLDER USERS IN AN INCLUSIVE SOCIETY
The ageing of the European population and the increasing reliance on the use of electronic technology for communication, employment and leisure has resulted in the need for ICT products and services
...
1
2
3
4
5
...