EUROCARE: a cross‐national study of co‐resident spouse carers for people with Alzheimer's disease: II—a qualitative analysis of the experience of caregiving

  title={EUROCARE: a cross‐national study of co‐resident spouse carers for people with Alzheimer's disease: II—a qualitative analysis of the experience of caregiving},
  author={Joanna Murray and Justine Schneider and Sube Banerjee and Anthony H. Mann},
  journal={International Journal of Geriatric Psychiatry},
Spouses caring for a partner with dementia are subject to physical, psychological and social stresses. In view of the part played by spouse carers in preventing admission to institutional care, a fuller understanding of the subjective experience of caring is an important area of enquiry. Qualitative analysis of their accounts of the difficulties and rewards in looking after their partners may indicate strategies to support them and to alleviate the stresses that they experience. 

Caring for a Spouse with Alzheimer's Disease: Stressors and Strengths

This study focused on the experiences of eight female participants who were responsible for the daily care of their husbands, all of whom were diagnosed with Alzheimer's disease. An essentially

Changes in the couple relationship in dementia care

Spouse carers of people with dementia face unique challenges as they adapt to the demands of caring whilst experiencing significant losses in their couple relationship. The ‘professionalization’ of

Sense of coherence amongst male caregivers in dementia

The aim of this study was to explore the experiences of men caring for spouses suffering from dementia from a salutogenic perspective. The study focused on the experiences of ten men caring for a

The time perspective of the Alzheimer caregiver

Purpose of the study: Caring for a spouse diagnosed with Alzheimer’s disease holds potentially severe negative consequences for the physical and psychological well-being of the caregiver. As it is

Spouses’ experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research

These findings provide insights into the day-to-day adjustments and experiences of spousal caregivers whilst highlighting the importance of considering the impact of cognitive decline and dementia in a social-relational context.

Experience sampling in dementia care: an innovative intervention to support caregivers in daily life

After participating in the e-health intervention, the caregivers felt more capable of taking on their caregiving responsibilities and experienced less stress and fewer negative thoughts.

Experience of companionship among family caregivers of persons with dementia: A qualitative study

Understanding about dementia, together with a good relationship with their ill family member, facilitated the caring role and the importance of receiving information about dementia-related challenges and the implications of being a caregiver is highlighted.

The experience of Italians caring for family members with Alzheimer's disease.

The Italian caregivers' respectful treatment of the patients demonstrated their profound sense of family duty, which included encouraging the patients to do self-care and occupational activities.

Identity and the Couple Relationship: An Interpretative Phenomenological Analysis of Women's Experiences of Caring for a Partner with Dementia

Within an ageing population, the number of people with dementia is rapidly increasing. Dementia is considered a global health issue affecting 44 million people worldwide (Alzheimer’s Research UK,

Grief in caregivers of persons with Alzheimer’s disease and related dementia: A qualitative synthesis

A meta-synthesis of studies focusing on grief in caregivers of people with Alzheimer’s disease or related dementia is provided, namely challenges of caregiving, losses and changes in the relationship, the role of dementia in grief, striving despite dementia, utilising social support and death as a relief from caregiving.



Dementia and cancer: a comparison of spouse caregivers.

Dementia caregivers were more adversely affected by their role than cancer caregivers, and younger spouse caregivers were significantly more compromised than older spouse providers.

The frustrations, gratifications, and well-being of dementia caregivers.

Face-to-face interviews with 50 older women caring at home for a husband with dementia revealed that gratification was associated with greater well-being and frustration with more distress, and the meanings of caregiving are more important to caregiverWell-being than the amount of care provided.

Personality counts for a lot: predictors of mental and physical health of spouse caregivers in two disease groups.

The data provided an excellent fit to the hypothesized model of the relationships between personality, disease group, social support, perceived stress, and mental and physical health and future research should include different domains of personality--states and longer term self-regulatory processes--to advance models of caregiving processes further.

Factors Affecting the Emotional Wellbeing of the Caregivers of Dementia Sufferers

The roles of such factors as the caregiver's attributional style and coping strategies, the caregivers' relationship with the dementia sufferer, and levels of formal and informal support are discussed with reference to identifying those caregivers who are particularly vulnerable to emotional disorder or strain.

Problems Reported by Relatives in a Community Study of Dementia

The supporters of 120 demented elderly people completed rating scales of the frequency and severity of the problems they faced, the amount of strain they experienced and their psychological

Gender, marital closeness, and depressive symptoms in elderly couples.

  • R. TowerS. Kasl
  • Psychology
    The journals of gerontology. Series B, Psychological sciences and social sciences
  • 1996
Both husbands and wives responded more strongly to their spouse's than to their own reports of marital closeness, with husbands having fewest depressive symptoms when they have emotionally independent wives, and wives having low levels when they feel important emotionally to their husbands.

Depression and other psychiatric morbidity in carers of elderly people living at home

It is shown that being a carer of an older person is not in itself a risk factor for psychiatric illness or for important psychological symptoms, and increased psychiatric morbidity in carers of people with psychiatric (rather than physical) illness may be mediated by the lack of a confiding relationship.

Psychiatric Complications of Dementia: Impact on Caregivers

Agitation, particularly physical aggression, may impact caregivers even more than does the cognitive status of the demented patient, and the relationship between psychiatric features of dementia and their impact on caregivers is determined.

The impact of the Symptoms of dementia on caregivers

The literature provided support for a relationship between non-cognitive features in dementia and psychological problems in caregivers, and suggested possible associations between cognitive deficits and some negative care-giver outcomes.