Does research into sensitive areas do harm? Experiences of research participation after a child's diagnosis with Ewing's sarcoma.

@article{Scott2002DoesRI,
  title={Does research into sensitive areas do harm? Experiences of research participation after a child's diagnosis with Ewing's sarcoma.},
  author={Debbie A Scott and Patricia Casarolli Valery and Frances M Boyle and Christopher J. Bain},
  journal={The Medical journal of Australia},
  year={2002},
  volume={177 9},
  pages={507-10}
}
OBJECTIVE To investigate family members' experiences of involvement in a previous study (conducted August 1995 to June 1997) following their child's diagnosis with Ewing's sarcoma. DESIGN Retrospective survey, conducted between 1 November and 30 November 1997, using a postal questionnaire. PARTICIPANTS Eighty-one of 97 families who had previously completed an in-depth interview as part of a national case-control study of Ewing's sarcoma. MAIN OUTCOME MEASURES Participants' views on how… CONTINUE READING

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