Does parental experience of the diagnosis and intervention process differ for children with auditory neuropathy?

  title={Does parental experience of the diagnosis and intervention process differ for children with auditory neuropathy?},
  author={Deidr{\'e} Stroebel and D. Swanepoel},
  journal={International journal of pediatric otorhinolaryngology},
  volume={78 12},
OBJECTIVES This study compared parental experience of the audiological diagnosis and intervention process in children with auditory neuropathy spectrum disorder and sensory neural hearing loss. METHODS A matched group survey was used with parents of children with auditory neuropathy spectrum disorder (ANSD) matched with a control group of parents and children with sensorineural hearing loss (SNHL). The two groups were matched in terms of the child's gender, age, amplifications used, social… Expand
Narrative review of EHDI in South Africa
  • S. Moodley, C. Storbeck
  • Medicine
  • The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings
  • 2015
A narrative review of peer-reviewed articles related to EHDI in South Africa was conducted by searching the EBSCOHOST, SCOPUS and JSTOR databases for the period January 1995 to September 2014 to gain a comprehensive overview of the current status and practice of screening and diagnosis in the field of paediatric hearing loss. Expand
Parental Decision-Making and Deaf Children: A Systematic Literature Review.
A systematic literature review was undertaken to identify the extent to which the principles of shared decision-making and informed choice have been implemented for parents when they make decisions related to their children with permanent hearing loss. Expand


Audiologic management of auditory neuropathy spectrum disorder in children: a systematic review of the literature.
The clinical evidence related to intervention for ANSD is at a very preliminary stage, and additional research is needed to address the efficacy of acoustic amplification and cochlear implantation in children with ANSD and the impact of this disorder on developmental outcomes. Expand
Auditory neuropathy spectrum disorder in the wider health context: Experiences of parents whose infants have been identified through newborn hearing screening programme
An insight into the parental experiences of how parents made sense of having their child identified with auditory neuropathy spectrum disorder (ANSD), given the broader context of their child's other health issues is presented. Expand
Clinical findings for a group of infants and young children with auditory neuropathy.
The results suggest that auditory neuropathy is more common in the infant population than previously suspected and the effects of neuropathy on auditory function appear to be idiosyncratic, producing significant variations in both the detection and discrimination of auditory signals. Expand
Auditory Neuropathy Characteristics in Children with Cochlear Nerve Deficiency
It is suggested that MRI is indicated for all children diagnosed with AN and children with cochlear nerve deficiency can present with electrophysiologic evidence of AN. Expand
Cortical maturation and behavioral outcomes in children with auditory neuropathy spectrum disorder
The results suggest that P1 CAEP responses may be a useful indicator of the extent to which neural dys-synchrony disrupts cortical development, and a good predictor of behavioral outcome in children with ANSD. Expand
Children With Auditory Neuropathy Spectrum Disorder ( ANSD )
In 1991, Arnold Starr and colleagues described an 11-year-old child with the paradoxic findings of absent auditory brainstem responses in the presence of normal cochlear microphonics (CMs) andExpand
Parental Distress: The Initial Phase of Hearing Aid and Cochlear Implant Fitting
Among children who were at the stage of pre-examination for a cochlear implant, better hearing and speech capacity was linked to more severe impairment of the parental state, and the parents whose children showed comparatively good language development at the time of pre—cochlear implants examination or hearing aid fitting were especially subjected to stress. Expand
Childhood hearing loss and risk profile in a South African population.
Age of diagnosis was significantly delayed, evidencing the lack of early hearing detection services in South Africa and the majority of children were diagnosed at ages precluding optimal benefits from early detection and subsequent intervention. Expand
Variation in Auditory Neuropathy Spectrum Disorder: Implications for Evaluation and Management
As the understanding of ANSD and the inherent variation among patients advances, the knowledge and methods that the authors bring to clinical practices should allow us to more accurately characterize function and implement appropriate management. Expand
Auditory neuropathy spectrum disorder: a review.
The need for more precise tools to describe the disorder in order to facilitate decisions about interventions and lead to better predictions of outcome is highlighted. Expand