Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.

@article{Mayhew2013DevelopmentOT,
  title={Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy.},
  author={Anna G Mayhew and Elena Stacy Mazzone and Michelle Eagle and Tina Duong and Maria Ash and Val{\'e}rie Decostre and Marlene Vandenhauwe and Katrijn Klingels and Julaine Florence and Marion Main and Flaviana Bianco and Erik Matthew Henrikson and Laurent Servais and Giles Campion and Elizabeth Vroom and Valeria Ricotti and Natalie Goemans and Craig M. McDonald and Eugenio Mercuri},
  journal={Developmental medicine and child neurology},
  year={2013},
  volume={55 11},
  pages={1038-45}
}
AIM An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD). METHOD The development of the PUL followed a number of steps… CONTINUE READING