Development of a quality-of-life instrument for autoimmune bullous disease: the Autoimmune Bullous Disease Quality of Life questionnaire.

@article{Sebaratnam2013DevelopmentOA,
  title={Development of a quality-of-life instrument for autoimmune bullous disease: the Autoimmune Bullous Disease Quality of Life questionnaire.},
  author={Deshan F Sebaratnam and Anna Marie Hanna and Shien-ning Chee and John W Frew and Supriya S. Venugopal and Benjamin S. Daniel and Linda K Martin and Lesley M. Rhodes and Jeremy Tan and Charles Qian Wang and Belinda Welsh and T Nijsten and Dedee F Murrell},
  journal={JAMA dermatology},
  year={2013},
  volume={149 10},
  pages={1186-91}
}
IMPORTANCE Quality-of-life (QOL) evaluation is an increasingly important outcome measure in dermatology, with disease-specific QOL instruments being the most sensitive to changes in disease status. OBJECTIVE To develop a QOL instrument specific to autoimmune bullous disease (AIBD). DESIGN A comprehensive item generation process was used to build a 45-item pilot Autoimmune Bullous Disease Quality of Life (ABQOL) questionnaire, distributed to 70 patients with AIBD. Experts in bullous disease… CONTINUE READING
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