Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndrome.

@article{Esplen2011DevelopmentAV,
  title={Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndrome.},
  author={Mary Jane Esplen and Noreen Stuckless and Steven Gallinger and Melyssa D. Aronson and Heidi Rothenmund and Kara M Semotiuk and Jacqueline E Stokes and Cliford Way and J. Green and Kate Butler and Helle Vendel Petersen and J M Wong},
  journal={Clinical genetics},
  year={2011},
  volume={80 5},
  pages={415-23}
}
A positive genetic test result may impact on a person's self-concept and affect quality of life. The purpose of the study was to develop a self-concept scale to measure such impact for individuals carrying mutations for a heritable colorectal cancer Lynch syndrome (LS). Two distinct phases were involved: Phase 1 generated specific colorectal self-concept candidate scale items from interviews with eight LS carriers and five genetic counselors, which were added to a previously developed self… CONTINUE READING
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