Development and initial validation of composite parent- and child-centered disease assessment indices for juvenile idiopathic arthritis.

@article{Consolaro2011DevelopmentAI,
  title={Development and initial validation of composite parent- and child-centered disease assessment indices for juvenile idiopathic arthritis.},
  author={Alessandro Consolaro and Nicolino Ruperto and Angela Pistorio and Bianca Lattanzi and Nicoletta Solari and Roberta Galasso and Silvia Pederzoli and Giulia Camilla Varnier and P Dole{\vz}alov{\'a} and Maria Orazia Alessio and Rub{\'e}n Burgos-Vargas and Richard Vesel{\'y} and Alberto Martini and Angelo Ravelli},
  journal={Arthritis care & research},
  year={2011},
  volume={63 9},
  pages={
          1262-70
        }
}
OBJECTIVE To develop and validate a parent-centered and a child-centered composite disease assessment index for juvenile idiopathic arthritis (JIA): the Juvenile Arthritis Parent Assessment Index (JAPAI) and the Juvenile Arthritis Child Assessment Index (JACAI), respectively. METHODS The JAPAI and the JACAI include 4 measures: parent/child rating of overall well-being, pain, physical function, and health-related quality of life (HRQOL). Validation analyses were conducted on nearly 5,000… CONTINUE READING
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