Development and Initial Validation of the Assessment of Caregiver Experience With Neuromuscular Disease

  title={Development and Initial Validation of the Assessment of Caregiver Experience With Neuromuscular Disease},
  author={Hiroko Matsumoto and Debra Clayton-Krasinski and Stephen A. Klinge and Jaime A. G{\'o}mez and Whitney A. Booker and Joshua E. Hyman and David P. Roye and Michael G. Vitale},
  journal={Journal of Pediatric Orthopaedics},
Background Orthopaedic intervention can have a wide range of functional and psychosocial effects on children with neuromuscular disease (NMD). In the multihandicapped child (Gross Motor Classification System IV/V), functional status, pain, psychosocial function, and health-related quality of life also have effects on the families of these child. The purpose of this study is to report the development and initial validation of an outcomes instrument specifically designed to assess the caregiver… 

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