Design and implementation of the North American Pediatric Cardiomyopathy Registry.

  title={Design and implementation of the North American Pediatric Cardiomyopathy Registry.},
  author={Michelle A. Grenier and Stavroula Kalis Osganian and Gerald F. Cox and Jeffrey Allen Towbin and Steven D. Colan and Paul R Lurie and Lynn A. Sleeper and E. John Orav and Steven E. Lipshultz},
  journal={American heart journal},
  volume={139 2 Pt 3},
The Pediatric Cardiomyopathy Registry (PCMR) was established to describe the epidemiologic features and clinical course of selected cardiomyopathies in patients aged 18 years or younger and to promote the development of etiology-specific treatments. Sixty-one private and institutional pediatric cardiomyopathy practices in the United States and Canada were recruited to participate in the PCMR. The registry consists of a prospective, population-based cohort of patients in 2 regions (New England… CONTINUE READING

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