Dementia information for culturally and linguistically diverse communities: sources, access and considerations for effective practice.
@article{Boughtwood2012DementiaIF,
title={Dementia information for culturally and linguistically diverse communities: sources, access and considerations for effective practice.},
author={Desiree Boughtwood and Christopher Shanley and Jon Adams and Yvonne Santalucia and Helena Kyriazopoulos and Dimity Pond and Jeffrey T J Rowland},
journal={Australian journal of primary health},
year={2012},
volume={18 3},
pages={
190-6
}
}Providing information about dementia has been shown to produce immense benefits for people living with dementia and their carers. The dementia information needs of culturally and linguistically diverse (CALD) families have not been comprehensively investigated. Addressing this research gap, the current study examines the perspectives of a range of stakeholders - CALD family caregivers (Arabic, Chinese, Italian and Spanish speaking), bilingual and bicultural workers, bilingual general…
15 Citations
Help seeking in older Asian people with dementia in Melbourne: Using the Cultural Exchange Model to explore barriers and enablers
- MedicineJournal of cross-cultural gerontology
- 2014
The “Cultural Exchange Model” enabled engagement with and modification of the approaches to meet the needs of the targeted CALD communities.
Qualitative Research on Dementia in Ethnically Diverse Communities
- Sociology, Political ScienceAmerican journal of Alzheimer's disease and other dementias
- 2013
The fieldwork phase of a qualitative research project on dementia caregiving in 4 CALD communities in south west Sydney, Australia is discussed, presenting and discussing crucial fieldwork issues that arose in the conduct of the project, particularly regarding participant recruitment and facilitation of focus groups.
Information needs and information seeking behaviour of people with dementia and their non-professional caregivers: a scoping review
- MedicineBMC Geriatrics
- 2020
Current dementia information sources available in English are extensive in the information they offer, but more emphasis needs to be placed on healthcare service-related information.
Developing education materials for caregivers of culturally and linguistically diverse patients: Insights from a qualitative analysis of caregivers' needs, access and understanding of information
- PsychologyHealth expectations : an international journal of public participation in health care and health policy
- 2019
To explore the information needs of caregivers of culturally and linguistically diverse (CALD) patients, and how they access and understand health information related to the management of their care…
Perceived unmet needs of informal caregivers of people with dementia in Singapore
- MedicineInternational Psychogeriatrics
- 2013
Informal caregivers face several challenges while caring for their relative with dementia and hence there is a clear demand to address their unmet needs for information, services, respite, and emotional and financial support.
Healthcare needs of older Arab migrants: a systematic review.
- Medicine, Political ScienceJournal of clinical nursing
- 2014
The healthcare needs of older Arab migrants, focussing on Arab-Australians and their socio-cultural characteristics, are explored to provide more culturally competent care and achieve better health outcomes.
Challenges in diagnosing dementia in patients with a migrant background - a cross-sectional study among German general practitioners
- Medicine, PsychologyBMC Family Practice
- 2019
Public health measures supporting GPs in their interaction with patients with a migrant background as well as information and services for dementia patients are needed.
Extreme heat and climate change: Adaptation in culturally and linguistically diverse (CALD) communities
- Political Science
- 2013
Abstract Background: Several overseas studies have identified that people in ethnic minority groups are at greater risk during heatwaves. However, there is a paucity of information on this issue in…
Exploration of information needs and development of resources to inform and support those at risk of falling
- Medicine
- 2015
A range of resources to help inform and support people at risk of falling and develop a range of information resources based upon the project findings are developed, which have been so far well-received by the public and health and social care professionals.
Barriers in general practitioners’ dementia diagnostics among people with a migration background in Germany (BaDeMi) - study protocol for a cross-sectional survey
- MedicineBMC Medical Research Methodology
- 2018
This study is the first in Germany focusing on how dementia diagnostics in general practice is performed, what problems occur, especially because of a migration background of patients, and how GPs cope with them.
References
SHOWING 1-10 OF 15 REFERENCES
The value of telephone support groups among ethnically diverse caregivers of persons with dementia.
- MedicineThe Gerontologist
- 2006
The findings demonstrate that telecommunications technology can overcome the often formidable logistical problems faced by both English- and Spanish-speaking caregivers, and it can provide benefits similar to those obtained in face-to-face support groups.
Family physicians' perspectives on care of dementia patients and family caregivers.
- MedicineCanadian family physician Medecin de famille canadien
- 2008
While family doctors are seeking a more seamless form of interdisciplinary dementia care, a large amount of that care comes from support services about which physicians are not well informed and are not interested in learning.
Closing the dementia care gap: Can referral to Alzheimer's Association chapters help?
- MedicineAlzheimer's & Dementia
- 2009
Information Provision for an Age-Friendly Community
- Medicine
- 2009
It is proposed that applying the principles of information provision elaborated in this research would begin to address some perennial challenges for older people and enhance their social inclusion.
Telling "the truth" in dementia--do attitude and approach of general practitioners and specialists differ?
- Medicine, Political SciencePatient education and counseling
- 2008
Providing education about Alzheimer's disease
- Education, PsychologyAging & mental health
- 2001
Dementia knowledge was measured before and after interventions designed to improve knowledge in a sample of 100 undergraduate students, showing that education improved knowledge of AD, as measured by increased scores on a dementia knowledge questionnaire.
Information about the information: Navigating services and supports for older people
- Political Science
- 2005
Having an ageing population is an issue facing many countries, particularly western nations. With governments and service providers focusing on healthy ageing and ageing in place, notions of choice…
Das Internet als Informationsquelle für pflegende Angehörige eines Demenzpatienten
- Medicine
- 2009
The Internet is particularly significant for the younger better-educated family caregivers, independent of gender, as a source of information on the diagnosis and treatment of dementia.
It's all in the details: Physician variability in disclosing a dementia diagnosis
- MedicineAging & mental health
- 2007
Group and individual variability was seen in attitudes about when and to whom they disclose a dementia diagnosis, who should deliver the news, what language is used, and what topics are covered.
Alzheimer's disease diagnosis disclosure in Brazil: a survey of specialized physicians' current practice and attitudes
- MedicineInternational Psychogeriatrics
- 2008
Disclosure of AD diagnosis is not common among specialized physicians in Brazil and different factors are involved, but discussion on advantages of diagnosis disclosure can be useful for improving the care of AD patients and their families.