Deliberative assessment of surrogate consent in dementia research.

@article{Kim2010DeliberativeAO,
  title={Deliberative assessment of surrogate consent in dementia research.},
  author={Scott Y H Kim and Rebecca A. Uhlmann and Paul S Appelbaum and David S. Knopman and Hyungjin Myra Kim and Laura J Damschroder and Elizabeth Beattie and Laura M. Struble and Raymond Gene De Vries},
  journal={Alzheimer's & dementia : the journal of the Alzheimer's Association},
  year={2010},
  volume={6 4},
  pages={342-50}
}
BACKGROUND Research involving incapacitated persons with dementia entails complex scientific, legal, and ethical issues, making traditional surveys of layperson views on the ethics of such research challenging. We therefore assessed the impact of democratic deliberation (DD), involving balanced, detailed education and peer deliberation, on the views of those responsible for persons with dementia. METHODS One hundred and seventy-eight community-recruited caregivers or primary decision-makers… CONTINUE READING

From This Paper

Figures, tables, and topics from this paper.

Citations

Publications citing this paper.
Showing 1-10 of 13 extracted citations

Debates About Neuroethics

Advances in Neuroethics • 2017

References

Publications referenced by this paper.
Showing 1-10 of 22 references

Proxy consent to research: the legal landscape.

Yale journal of health policy, law, and ethics • 2008
View 2 Excerpts

Beyond polling alone: the quest for an informed public

JS Fishkin
Crit Rev 2006;18:157–65 • 2006
View 2 Excerpts

Similar Papers

Loading similar papers…