Deliberative assessment of surrogate consent in dementia research.

  title={Deliberative assessment of surrogate consent in dementia research.},
  author={Scott Y H Kim and Rebecca A. Uhlmann and Paul S Appelbaum and David S. Knopman and Hyungjin Myra Kim and Laura J Damschroder and Elizabeth Beattie and Laura M. Struble and Raymond Gene De Vries},
  journal={Alzheimer's & dementia : the journal of the Alzheimer's Association},
  volume={6 4},
BACKGROUND Research involving incapacitated persons with dementia entails complex scientific, legal, and ethical issues, making traditional surveys of layperson views on the ethics of such research challenging. We therefore assessed the impact of democratic deliberation (DD), involving balanced, detailed education and peer deliberation, on the views of those responsible for persons with dementia. METHODS One hundred and seventy-eight community-recruited caregivers or primary decision-makers… CONTINUE READING

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