Decisions to participate in fragile X and other genomics-related research: Native American and African American voices.

@article{Johnson2009DecisionsTP,
  title={Decisions to participate in fragile X and other genomics-related research: Native American and African American voices.},
  author={Vanessa A Thomas Johnson and Karethy A Edwards and Stephanie L. Sherman and Lancer D. Stephens and W. Mattieu Williams and Alonna Adair and Mary Helen Deer-Smith},
  journal={Journal of cultural diversity},
  year={2009},
  volume={16 3},
  pages={127-35}
}
UNLABELLED The lack of adequate minority representation, including Native-Americans (NA) and African-Americans (AA), in health related research is well documented. Nowhere is this truer than in the area of genomics-related research, which is especially troubling as NA and AA have some of the highest rates of overall morbidity and mortality due to genetic diseases. OBJECTIVES The purpose of this study is to explore factors associated with the under representation of NA and AA adults in genetic… CONTINUE READING