Dealing With Uncertainty and Lack of Knowledge in Diverse Sex Development: Controversies on Early Surgery and Questions of Consent
@article{Lampalzer2020DealingWU, title={Dealing With Uncertainty and Lack of Knowledge in Diverse Sex Development: Controversies on Early Surgery and Questions of Consent}, author={Ute Lampalzer and Peer Briken and Katinka Schweizer}, journal={Sexual Medicine}, year={2020}, volume={8}, pages={472 - 489} }
8 Citations
‘That decision really was mine…’. Insider perspectives on health care controversies about intersex/diverse sex development
- MedicineCulture, health & sexuality
- 2021
Abstract After 20 years of debate on intersex care, there has been a slight movement away from the paradigm of ‘optimal gender’ including early genital modification to conform to predicted gender…
Psychosocial care and support in the field of intersex/diverse sex development (dsd): counselling experiences, localisation and needed improvements
- Psychology, MedicineInternational Journal of Impotence Research
- 2021
An exploratory online study investigating counselling experiences and the ideas that different groups of participants have concerning the localisation of counselling structures and improving care shows a gap between receiving psychosocial and medical care in the group of adult lived-experience experts, who had received less psychossocial care than medical interventions.
Self- and proxy-reported outcomes after surgery in people with disorders/differences of sex development (DSD) in Europe (dsd-LIFE).
- MedicineJournal of pediatric urology
- 2020
Assessing the health-related management of people with differences of sex development
- Medicine, Political ScienceEndocrine
- 2021
The social and legal approach to care for DSD during the last two decades is summarized, the results of recently funded European research projects dealing with health-related issues in DSD are reviewed, and the compilation of quality indicators that will be needed to benchmark health care provision and health care-related outcomes are addressed.
Illness Uncertainty Longitudinally Predicts Distress Among Caregivers of Children Born With DSD.
- Psychology, MedicineJournal of pediatric psychology
- 2020
Caregivers' perceptions of uncertainty about their child's DSD are highest soon after diagnosis, and uncertainty continues to predict both anxious and depressive symptoms across time, with parent illness uncertainty being an important clinical target.
Psychosocial approaches and discursive gaps in intersex healthcare: findings from an Israeli–German action research study
- SociologyCulture, health & sexuality
- 2020
How the project’s goals, processes and outcomes created educational material on intersex which uses positive language, explores intersex in the Jewish tradition, improves the support offered to parents of intersex children, and examines cross-cultural differences that arose in the encounters between the Israeli and German participants are described.
Congenital adrenal hyperplasia - current insights in pathophysiology, diagnostics and management.
- Medicine, BiologyEndocrine reviews
- 2021
Current insights in congenital adrenal hyperplasia are provided with special attention to more detailed understanding of steroidogenic pathways, refinements in neonatal screening, improved diagnostic measurements utilizing chromatography and mass spectrometry coupled with steroid profiling, and improved genotyping methods.
Letter to Editor. Comment on: "Self- and proxi-reported after surgery in people with Disorders/Differences of Sex Development (DSD) in Europe (dsd-LIFE)".
- MedicineJournal of pediatric urology
- 2021
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