Data Enclaves for Sharing Information Derived From Clinical and Administrative Data.

@article{Platt2018DataEF,
  title={Data Enclaves for Sharing Information Derived From Clinical and Administrative Data.},
  author={R. Platt and T. Lieu},
  journal={JAMA},
  year={2018},
  volume={320 8},
  pages={
          753-754
        }
}
The promise that big data will transform health care has yet to be fulfilled. Even though essentially all medical care now leaves an electronic trail, data are underused as a way to create knowledge about the safety and effectiveness of medical treatments, the generalizability of care practices, and the effects of medical coverage policies. National leaders have called for greater use of electronic data to generate evidence. For example, the National Institutes of Health’s strategic plan for… Expand
Bringing Code to Data: Do Not Forget Governance
Detecting Systemic Data Quality Issues in Electronic Health Records
MIMIC in the OMOP Common Data Model
Treatment Patterns for Chronic Comorbid Conditions in Patients With Cancer Using a Large-Scale Observational Data Network
Transforming Dementia Care Through Pragmatic Clinical Trials Embedded in Learning Healthcare Systems
Challenges in IBD Research: Pragmatic Clinical Research.
Understanding and Enhancing Sepsis Survivorship: Priorities for Research and Practice.
Cross‐Network Directory Service: Infrastructure to enable collaborations across distributed research networks
Inverse probability weighted Cox model in multi-site studies without sharing individual-level data
...
1
2
...

References

SHOWING 1-5 OF 5 REFERENCES
State and Local Chronic Disease Surveillance Using Electronic Health Record Systems
Health data as a core utility for the common good. https://nam.edu/wp-content /uploads/2017/10/2-McGinnis-Working _Core-Utility-Slides_14sep17.pdf
  • Accessed June
  • 2018
Scholars have data on millions of Facebook users: who’s guarding it? https://www .nytimes.com/2018/05/06/technology/facebook -information-data-sets-academics.html
  • Accessed May
  • 2018