Cystic Fibrosis Foundation Patient Registry data We used information from the Cystic Fibrosis Foundation

@inproceedings{Liou2003CysticFF,
  title={Cystic Fibrosis Foundation Patient Registry data We used information from the Cystic Fibrosis Foundation},
  author={Theodore G Liou and Frederick R. Adler and Stacey C. Fitzsimmons and Barbara C. Cahill and Jonathan R. Hibbs and Bruce C. Marshall},
  year={2003}
}
The objective of this study was to create a 5-year survivorship model to identify key clinical features of cystic fibrosis. Such a model could help researchers and clinicians to evaluate therapies, improve the design of prospective studies, monitor practice patterns, counsel individual patients, and determine the best candidates for lung transplantation. The authors used information from the Cystic Fibrosis Foundation Patient Registry (CFFPR), which has collected longitudinal data on… CONTINUE READING