Costs and outcomes over 36 years of patients with phenylketonuria who do and do not remain on a phenylalanine-restricted diet.

@article{Guest2013CostsAO,
  title={Costs and outcomes over 36 years of patients with phenylketonuria who do and do not remain on a phenylalanine-restricted diet.},
  author={Julian F Guest and Jun Jie Bai and Riza R Taylor and Erikas Sladkevicius and Patrick J. Lee and Robin H L Lachmann},
  journal={Journal of intellectual disability research : JIDR},
  year={2013},
  volume={57 6},
  pages={567-79}
}
BACKGROUND To quantify the costs and consequences of managing phenylketonuria (PKU) in the UK and to estimate the potential implications to the UK's National Health Service (NHS) of keeping patients on a phenylalanine-restricted diet for life. METHOD A computer-based model was constructed depicting the management of PKU patients over the first 36 years of their life, derived from patients suffering from this metabolic disorder in The Health Improvement Network database (a nationally… CONTINUE READING