Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions?

@article{Willison2009ConsentFU,
  title={Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions?},
  author={Donald J. Willison and Valerie Steeves and Cathy A Charles and Lisa J. Schwartz and Jennifer Ranford and Gina Agarwal and Ji Emmy Cheng and Lehana Thabane},
  journal={BMC Medical Ethics},
  year={2009},
  volume={10},
  pages={10 - 10}
}
BackgroundStigma refers to a distinguishing personal trait that is perceived as or actually is physically, socially, or psychologically disadvantageous. Little is known about the opinion of those who have more or less stigmatizing health conditions regarding the need for consent for use of their personal information for health research.MethodsWe surveyed the opinions of people 18 years and older with seven health conditions. Participants were drawn from: physicians' offices and clinics in… CONTINUE READING

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How the public views privacy and health research

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