Community care for adults with Williams syndrome: how families cope and the availability of support networks.

@article{Udwin1998CommunityCF,
  title={Community care for adults with Williams syndrome: how families cope and the availability of support networks.},
  author={Orlee Udwin and Patricia Howlin and Mark Davies and Edie Mannion},
  journal={Journal of intellectual disability research : JIDR},
  year={1998},
  volume={42 ( Pt 3)},
  pages={238-45}
}
A study of the adjustment difficulties and needs of 70 adults with Williams syndrome found that the majority continued to live at home and remained heavily dependent on their families for their self-care. Twenty-nine families (41.4%) had had no contact with a social worker in the preceding 2 years, and 34 out of the 48 families whose children still lived at home (70.8%) had no access to respite care. Advice regarding benefits, and appropriate living and occupational arrangements for the adults… CONTINUE READING

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