Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening.

@article{Miller2009ClinicalOA,
  title={Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening.},
  author={Fiona Alice Miller and Robin Zoe Hayeems and Yvonne Bombard and Julian Little and June C Carroll and Benita Wilson and Judith Md Allanson and Martha Jane Paynter and Jessica Peace Bytautas and Renee Christensen and Pranesh Chakraborty},
  journal={Journal of medical ethics},
  year={2009},
  volume={35 10},
  pages={626-34}
}
BACKGROUND Expanded newborn screening generates incidental results, notably carrier results. Yet newborn screening programmes typically restrict parental choice regarding receipt of this non-health serving genetic information. Healthcare providers play a key role in educating families or caring for screened infants and have strong beliefs about the management of incidental results. METHODS To inform policy on disclosure of infant sickle cell disorder (SCD) carrier results, a mixed-methods… CONTINUE READING

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