Can Online Discussion Sites Generate Quality Data for Research Purposes?

  title={Can Online Discussion Sites Generate Quality Data for Research Purposes?},
  author={Helen E. Smith and Alpaslan Bulbul and Christina J. Jones},
  journal={Frontiers in Public Health},
We have recently presented orally the preliminary findings of some research where we derived our data from online discussion sites. Our research described parents’ and caregivers’ experiences of administering medications to young children (1, 2). Different aspects of these data have been presented at four different conferences (each in a different country, and across two continents). On each occasion, our audience of clinicians and researchers have been divided about the credibility and quality… 

Caregivers’ perspectives and experiences of withdrawing acetylcholinesterase inhibitors and memantine in advanced dementia: a qualitative analysis of an online discussion forum

The study findings highlight the complexity surrounding optimising dementia pharmacotherapy and antidementia medication withdrawal, highlighting the need for treatment to be person-centred and highly individualised.

“My kid, my rule”: Governing children’s digital footprints as a source of dialectical tensions between mothers and daughters-in-law

This paper reports on findings from an exploratory study on social media dilemmas (SMDs) mothers experience about their children’s social media presence when their mothers-in-law share about their

Public Perspectives of Using Social Media Data to Improve Adverse Drug Reaction Reporting: A Mixed-Methods Study

Public opinion about using automated methods to detect and report mentions of ADRs on social media to enhance pharmacovigilance efforts is explored to optimise future ADR reporting from online health communities.

‘The mean mummy way’ – experiences of parents instilling eye drops to their young children as described in online forums and blogs

Advice given to parents needs to go beyond the instillation of the eye drops, and include advice on child restraint, distraction techniques and allaying distress, to alleviate their own and their child’s distress.

'Faking it': Exploring adolescent perceptions of depression (in)authenticity and 'attention seeking'.

Adolescent depression literacy and stigma programmes should tackle stigma towards perceived inauthenticity and promote the message that all adolescent distress deserves attention and help, according to a dichotomy between so-called 'real' and 'fake' depression.

Beyond the Surface: Sharenting as a Source of Family Quandaries: Mapping Parents’ Social Media Dilemmas

  • Davide Cino
  • Psychology
    Western Journal of Communication
  • 2022
Sharenting is a common habit for parents in the digital age. Despite common discourse describing parents as naïve about it, empirical data supports many of them grapple with digital dilemmas

Resilience over recovery: A feasibility study on a self-taught resilience programme for paramedics

Research within the last 20 years has suggested that the prevalence of post-traumatic stress disorder (PTSD) is greater in paramedics than the general population. However, while treatment options are

Social Media Big Data: The Good, The Bad, and the Ugly (Un)truths

An overview of both the negative and positive public health impact of social media that has come to light in the course of CO VID-19 with an emphasis on rampant disinformation during COVID-19 is provided, and potential future directions for research in this emerging area of public health are concluded.

STudy on E-Cigarettes and Pregnancy (STEP) – Study Protocol of a Mixed Methods Study on Risk Perception of E-Cigarette Use During Pregnancy and Sample Description

The results of STEP provide starting points for the development of tailored preventive measures for pregnant women by exploring differences in risk perception according to sociodemographic characteristics and tobacco and e-cigarette usage.



Unsolicited Narratives from the Internet: A Rich Source of Qualitative Data

A proposed model describing the process for deciding when such data are publicly available, as defined by the Office for the Protection of Rights of Research Subjects, and when the use of the data requires consent is presented.

E-mail: A qualitative research medium for interviewing?

This paper explores the opportunities that developments in computer-mediated Communication (CMC) are making available for social science research. In particular, the use of electronic mail (e-mail)

Sharing experiences and social support requests in an Internet forum for patients with systemic lupus erythematosus

The demand/supply of social support through the Internet in relation with the description of personal illness experiences is described to show different purposes for posts: starting new relationships, seeking information, receiving emotional support, and giving a contribution.

Observing real-world groups in the virtual field: The analysis of online discussion.

  • D. Giles
  • Sociology
    The British journal of social psychology
  • 2016
Way in which membership categorization analysis and social identity theory can complement one another in the exploration of both group processes and the rhetorical deployment of identities as dynamic phenomena in online discussion is considered.

Using thematic analysis in psychology

Thematic analysis is a poorly demarcated, rarely acknowledged, yet widely used qualitative analytic method within psychology. In this paper, we argue that it offers an accessible and theoretically

Qualitative interviews in psychology: problems and possibilities

This paper distinguishes a series of contingent and necessary problems that arise in the design, conduct, analysis and reporting of open-ended or conversational qualitative interviews in

Asynchronous learning networks as a virtual classroom

A historical perspective is provided; “community” is defined as a social network; studies of how computer-mediated communication (CMC) affects community interaction are summarized; examples of different kinds of communities communicating through the Internet are surveyed; and look at asynchronous learning networks (ALNs) as an example of an online community.

Non‐invasive prenatal testing for trisomy 21: a cross‐sectional survey of service users' views and likely uptake

To assess the views and likely uptake of non‐invasive prenatal testing (NIPT) for trisomy 21 among potential service users in the UK, a survey of current and potential users of NIPT is conducted.