Burden of care in amyotrophic lateral sclerosis.

  title={Burden of care in amyotrophic lateral sclerosis.},
  author={Martin J. Hecht and Elmar Graesel and Sebastian Tigges and Thomas Hillemacher and Martin Winterholler and M. -J. Hilz and Dieter Heuss and Bernhard Neundoerfer},
  journal={Palliative medicine},
  volume={17 4},
OBJECTIVES Amyotrophic lateral sclerosis (ALS) is a fatal disease with unique demands on patients and carers. PATIENTS AND METHODS The total burden of care and burden components in 37 ALS carers were measured using validated questionnaires. Furthermore, influencing factors (functional impairment of the patient, additional carers, participation in support groups) were assessed. RESULTS The mean total burden of care for ALS was low compared with dementia, mixed neuropsychiatric and internal… CONTINUE READING

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