Burden, professional support, and social network in families of children and young adults with muscular dystrophies

Abstract

INTRODUCTION This study explores burden and social and professional support in families of young patients with muscular dystrophies (MDs) in Italy. METHODS The study was carried out on 502 key relatives of 4- to 25-year-old patients suffering from Duchenne, Becker, or Limb-Girdle MD who were living with at least 1 adult relative. RESULTS A total of 77.1… (More)
DOI: 10.1002/mus.24503

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