Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers

@article{Hens2009BiologicalSC,
  title={Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers},
  author={Kristien Hens and Herman Nys and Jean-Jacques Cassiman and Kris Dierickx},
  journal={European Journal of Human Genetics},
  year={2009},
  volume={17},
  pages={979-990}
}
Stored tissue samples are an important resource for epidemiological genetic research. Genetic research on biological material from minors can yield valuable information on the development and genesis of early-onset genetic disorders and the early interaction of environmental and genetic factors. The use of such tissue raises some specific ethical and governance questions, which are not completely covered by the discussion on biological materials from adults. We have retrieved 29 guidelines and… CONTINUE READING
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