Beyond the disorder: one parent's reflection on genetic counselling.

Abstract

As a mother of two sons with adrenoleukodystrophy the author of this paper writes about her experiences of genetic counselling following the diagnosis. She discusses the dilemmas, emotions and aftermath this knowledge has brought to her family and the roles she played. Personal concerns are raised about the values guiding genetic counselling which, she… (More)

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@article{McGowan1999BeyondTD, title={Beyond the disorder: one parent's reflection on genetic counselling.}, author={Rebecca McGowan}, journal={Journal of medical ethics}, year={1999}, volume={25 2}, pages={195-9} }