Benefit-risk of Patients' Online Access to their Medical Records: Consensus Exercise of an International Expert Group

@article{Liyanage2018BenefitriskOP,
  title={Benefit-risk of Patients' Online Access to their Medical Records: Consensus Exercise of an International Expert Group},
  author={Harshana Liyanage and Siaw-Teng Liaw and Emmanouela Konstantara and Freda Mold and Richard Schreiber and Craig E. Kuziemsky and Amanda L. Terry and Simon de Lusignan},
  journal={Yearbook of Medical Informatics},
  year={2018},
  volume={27},
  pages={156 - 162}
}
Summary Background:  Patients' access to their computerised medical records (CMRs) is a legal right in many countries. However, little is reported about the benefit-risk associated with patients' online access to their CMRs. Objective:  To conduct a consensus exercise to assess the impact of patients' online access to their CMRs on the quality of care as defined in six domains by the Institute of Medicine (IoM), now the National Academy of Medicine (NAM). Method:  A five-round Delphi study was… 

Figures and Tables from this paper

Adult patient access to electronic health records.
TLDR
Results suggest that the effects of EHR access alone and with additional functionalities are mostly uncertain when compared with usual care, and low-quality evidence suggests that the intervention may have little to no effect on mortality and other adverse events.
Systematic Literature Review of My Health Record System
TLDR
There is insufficient evidence that any outcomes have been achieved relating to any of the objectives in the My Health Record (MyHR) system, and research is required to determine whether the MyHR system helped improve Australia's healthcare system according to the objectives stated in the Act 2012.
Improving the impact of clinical documentation through patient-driven co-design: experiences with cancer pathology reports
TLDR
An experience-based co-design approach was used to inform the redesign of cancer pathology reports to improve their patient-centeredness and impact on patient engagement, providing a framework that can guide the rapid development of patient-centred pathology reports for all cancer types.
Intensification to injectable therapy in type 2 diabetes: mixed methods study (protocol)
TLDR
Perceptions of patients and clinicians in primary care on the initiation of injectable therapies in T2D, and the context within which those decisions are made are investigated to provide a detailed insight into the dynamic two-way decision-making process underpinning use of injectables for type 2 diabetes mellitus.
Medical Sports Data Privacy Protection Method Based on Legal Risk Control
TLDR
The purpose of this paper is to correctly understand the positive role of medical sports big data research in the medical field and standardize the behavior of medical staff and show that the medical sports information data has certain regularity and particularity, ease to spread, and mining.
Hoe wenselijk is online inzage in het medisch dossier door patiënten?
Sinds 1 juli 2020 heeft iedere zorggebruiker in Nederland het recht zijn medische gegevens elektronisch in te zien. Het stimuleringsprogramma OPEN helpt huisartsenpraktijken om dit praktisch mogelijk
Benefit-risk of Patients' Online Access to their Medical Records: Consensus Exercise of an International Expert Group
TLDR
Patients' online access to their CMRs should be part of all CMR systems, but further evidence is required about outcomes, as there is scope to improve many of the processes of care it purports to support.

References

SHOWING 1-10 OF 35 REFERENCES
Accessing personal medical records online: A means to what ends?
Online access to medical records: finding ways to minimise harms.
TLDR
It is not known whether online access translates into better health or health care for patients or whether it improves service efficiency, so there has been no study on this topic as yet.
Providing patients online access to their primary care computerised medical records: a case study of sharing and caring.
  • A. Hannan
  • Medicine
    Informatics in primary care
  • 2010
TLDR
This case study provides a model of how to set up patient access to electronic records and includes the development of a practice-based web portal regularly updated with health advice.
Patients' online access to their electronic health records and linked online services: a systematic review in primary care.
TLDR
These services positively impacted on patient safety, although there were variations of record access and use by specific ethnic and socioeconomic groups, and patients using online services reported increased convenience and satisfaction.
Patients’ online access to their electronic health records and linked online services: a systematic interpretative review
TLDR
Investigating the effect of providing patients online access to their electronic health record (EHR) and linked transactional services on the provision, quality and safety of healthcare found patient online access and services offer increased convenience and satisfaction.
Experiences of Healthcare Professionals to the Introduction in Sweden of a Public eHealth Service: Patients' Online Access to their Electronic Health Records
TLDR
It is concluded that healthcare professionals must be involved in the implementation of public eHealth services such as EHRs and that real experiences of the professionals should be better disseminated to their inexperienced peers.
Online Access to Doctors' Notes: Patient Concerns About Privacy
TLDR
When considering online access to visit notes, approximately one-third of patients had concerns about privacy at baseline and post-intervention, suggesting that the benefits of onlineAccess to medical records may outweigh patients’ perceived risks to privacy.
Inviting Patients to Read Their Doctors' Notes: A Quasi-experimental Study and a Look Ahead
TLDR
Patients accessed visit notes frequently, a large majority reported clinically relevant benefits and minimal concerns, and virtually all patients wanted the practice to continue, with doctors experiencing no more than a modest effect on their work lives.
Characteristics of Patients Who Report Confusion After Reading Their Primary Care Clinic Notes Online
TLDR
Characteristics and health behaviors of patients who report confusion after reading their doctors’ notes online are elucidated, a critical step in reducing gaps in provider–patient communication and in efforts to tailor educational approaches for patients.
The Effects of Web-Based Patient Access to Laboratory Results in British Columbia: A Patient Survey on Comprehension and Anxiety
TLDR
While most patients who received their laboratory test results online reported little anxiety after receiving their results and were satisfied with the service, there may be opportunities to improve comprehension of results.
...
...