Avoiding Ableist Language: Suggestions for Autism Researchers

@inproceedings{BottemaBeutel2020AvoidingAL,
  title={Avoiding Ableist Language: Suggestions for Autism Researchers},
  author={Kristen Bottema‐Beutel and Steven Kenneth Kapp and Jessica Nina Lester and Noah J. Sasson and Brittany N. Hand},
  year={2020}
}
In this commentary, we describe how language used to communicate about autism within much of autism research can reflect and perpetuate ableist ideologies (i.e., beliefs and practices that discrimi... 

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References

SHOWING 1-10 OF 127 REFERENCES

What can physicians learn from the neurodiversity movement?

A physician offers insights about autism from inside and outside the autism self-advocacy movement in the hopes that her ideas help her colleagues treat each autistic person as an individual.

Representing Autism: Culture, Narrative, Fascination

List of Figures Permissions Preface: questions Introduction: autism and narrative 1. Presences: autistic difference 2. Idiots and savants 3. Witnessing 4. Boys and girls, men and women 5. In our

A new era for autism research, and for our journal

Author(s): Pellicano, Liz; Mandy, Will; Bolte, Sven; Stahmer, Aubyn; Lounds Taylor, Julie; Mandell, David S

Empathizing with sensory and movement differences: moving toward sensitive understanding of autism

  • S. Kapp
  • Psychology
    Front. Integr. Neurosci.
  • 2013
TLDR
Evidence that other factors are involved in autistic people's atypical social communication is provided, and the need for better interpersonal and societal understanding of and support for autistic people is suggested.

Autism: A Social and Medical History

Preface: Autism, and How We Got Here 1. A Nameless Difference 2. Autism Before and After the Enlightenment 3. Workhouses, Asylums, and the Rise of Behavioural Sciences 4. The Social Construction of

Identifying Language for People on the Autism Spectrum: A Scoping Review

TLDR
A scoping review of literature from 2010 to 2018 regarding identifying language for people on the autism spectrum identified a paucity of research that systematically explored and considered antagonisms, representation, and potential consequences of either of the current modes of identifying language becoming dominant.

Autism: A New Introduction to Psychological Theory and Current Debate

The autism research world has made considerable strides since the first edition of Happé’s book, so it is timely that a new version now emerges. As perspectives are frequently diverse (Pellicano,

Two Winding Parent Paths to Neurodiversity Advocacy

In 2011 Shannon Des Roches Rosa and Jennifer Byde Myers founded and began editing “Thinking Person’s Guide to Autism” which is a neurodiversity-oriented, evidence-grounded autism website

Three Reasons Not to Believe in an Autism Epidemic

TLDR
Three primary sources of misunderstanding are reviewed: lack of awareness about the changing diagnostic criteria, uncritical acceptance of a conclusion illogically drawn in a California-based study, and inattention to a crucial feature of the “child count” data reported annually by the U.S. Department of Education.

Exploring how the social model of disability can be re-invigorated for autism: in response to Jonathan Levitt

Abstract Levitt argues that the social model of disability needs to be re-invigorated, potentially by adapting the tool for separate countries. The social model has been successfully applied for some
...