Corpus ID: 14170967

Assessing the quality of information to support people in making decisions about their health and healthcare

@inproceedings{Coulter2006AssessingTQ,
  title={Assessing the quality of information to support people in making decisions about their health and healthcare},
  author={A. Coulter and J. Ellins and D. Swain and A. Clarke and P. Heron and F. Rasul and H. Magee and H. Sheldon},
  year={2006}
}
The Picker Institute works with patients, professionals and policy makers to promote understanding of the patient's perspective at all levels of healthcare policy and practice. We undertake a unique combination of research, development and policy activities which together work to make patients' views count. There are three key strands to our work: • Measurement-researching and evaluating patients' experience • Improvement-leading initiatives that make improvements happen • Policy-building… Expand
International Patient Decision Aid Standards (IPDAS): beyond decision aids to usual design of patient education materials
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  • Medicine
  • Health expectations : an international journal of public participation in health care and health policy
  • 2007
TLDR
An international collaboration recently reported a set of criteria for judging a good DA, aimed at improving quality of DAs, which I believe represent important research-based principles to guide design of patient education materials. Expand
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The 2004 United Kingdom white paper ‘Better information, better choices, better health’ sets out an ambitious strategy for the provision of health information, and what can be done to improve health communication. Expand
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There are a surprising number of practical problems to be addressed before communication of clear, relevant and appropriately timed information about patients' needs can become a reality in daily practice. Expand
Working in partnership with patients — Why do it and what benefits can be realised?
TLDR
Examples from the Patients Accelerating Change programme show the positive difference that effective, well-executed involvement can achieve and are essential to help ensure that involvement becomes embedded within the culture of healthcare organisations. Expand
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TLDR
Investing in health literacy will improve population health outcomes and reduce health care costs, and the extent and impact of low health literacy among patients by focusing on its health, economic and social impacts is examined. Expand
How could health information be improved? Recommended actions from the Victorian Consultation on Health Literacy.
  • S. Hill, Tanya A Sofra
  • Medicine
  • Australian health review : a publication of the Australian Hospital Association
  • 2018
TLDR
A framework to improve health information would underpin the efforts to meet literacy needs in a more consistent way, improving standards and ultimately increasing the participation by consumers and carers in health decision making and self-management. Expand
Patients' perspectives of the doctor-patient relationship and information giving across a range of literacy levels.
TLDR
Many patients irrespective of their HL skills, feel unable to access, understand and utilize health information, and healthcare professionals must improve their communication skills and ensure that health information is clear and easy to access. Expand
Confronting evidence: individualised care and the case for shared decision-making.
TLDR
There is a case for implementing and evaluating shared decision-making pilot projects in Ireland, and there is evidence of more clinically appropriate care patterns, improved patient understanding and sense of empowerment. Expand
Prominent strategy but rare in practice: shared decision-making and patient decision support technologies in the UK.
In the UK there has recently been considerable financial investment in the publicly funded health service, NHS, but it is unclear whether this has resulted in improvements in patient participationExpand
Written patient information materials used in general practices fail to meet acceptable quality standards
TLDR
The quality of patient information materials available at general practices in Styria is poor and not suitable as a basis for informed decisions by patients, which may actually undermine efforts to enable patients to make shared informed decisions. Expand
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Shared decision making, in which patients and health professionals join in both the process of decision making and ownership of the decision made, is attracting considerable interest as a means by which patients' preferences can be incorporated into clinical decisions. Expand
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A conceptual background for population-oriented interventions to promote informed decisions (IDM interventions) is provided, followed by a systematic review of studies of IDM interventions to promoting cancer screening and whether these interventions resulted in individuals participating in decision making at a desirable level. Expand
DISCERN: an instrument for judging the quality of written consumer health information on treatment choices.
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While some subjectivity is required for rating certain criteria, the findings demonstrate that the instrument can be applied by experienced users and providers of health information to discriminate between publications of high and low quality. Expand
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Decision aids: are they worth it? A systematic review
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Improved outcomes result from the use of CDA in some categories of outcome but insufficient evidence exists yet to support improved outcomes in all categories or to evaluate whether, given the considerable costs of many CDAs, funding for extensive ongoing development and testing can be sustained. Expand
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The objective of this study was to conduct a comprehensive, systematic review of the literature to determine the impact of decision aids on cancer prevention, screening, and treatment decisions. Expand
Personalised risk communication for informed decision making about entering screening programs.
TLDR
Personalised risk communication (whether written, spoken or visually presented) was associated with increased uptake of screening tests and there was no evidence from these studies that this increase in uptake of tests was related to informed decision making by consumers. Expand
What predicts patients' interest in the Internet as a health resource in primary care in England?
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Access, demographics and, particularly, motivational factors all influence patients' interest in the Internet as a health resource and proposals to encourage more widespread use of digital health information need to take account of this complexity and not deal with access issues alone. Expand
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IHCAs were found to have a negative effect on clinical outcomes, and consumers who wish to increase their knowledge or social support amongst people with a similar problem may find an IHCA helpful, however, consumers whose primary aim is to achieve optimal clinical outcomes should not use an IhCA at present. Expand
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