Adults with intellectual disabilities and their carers as researchers and participants in a RCT.

  title={Adults with intellectual disabilities and their carers as researchers and participants in a RCT.},
  author={Vicky Turk and Geoffrey Leer and Sarah Burchell and Sukhjinder Khattram and Roslyn Corney and Gillian Rowlands},
  journal={Journal of applied research in intellectual disabilities : JARID},
  volume={25 1},
BACKGROUND This article describes the process of including people with intellectual disabilities (ID) and carers of people with ID as researchers and participants in randomised controlled trial (RCT) research. People with ID are rarely involved in research about their health, either as researchers or participants. Carers are often included as research informants, but family carers are rarely involved as researchers. METHOD Four teams of researchers each comprising a researcher with ID, a… CONTINUE READING
Related Discussions
This paper has been referenced on Twitter 1 time. VIEW TWEETS

From This Paper

Figures, tables, and topics from this paper.


Publications citing this paper.
Showing 1-6 of 6 extracted citations

Peer-reviewed articles on inclusive research: Do co-researchers with intellectual disabilities have a voice?

Journal of applied research in intellectual disabilities : JARID • 2018
View 3 Excerpts

Conceptualizing inclusive research with people with intellectual disability.

Journal of applied research in intellectual disabilities : JARID • 2014
View 1 Excerpt


Publications referenced by this paper.
Showing 1-10 of 26 references

An evaluation of the implementation of hand held health records with adults with learning disabilities: a cluster randomised control trial

V. Turk, S. Burchell, +5 authors K. Painter
Journal of Applied Research in Intellectual Disability • 2010
View 5 Excerpts
Highly Influenced

Reflections on doing emancipatory disability research

C. Barnes
Disabling Barriers – Enabling Environments • 2004
View 2 Excerpts
Highly Influenced

Disability Studies: Past, Present and Future

L. Barton, M. Oliver
View 1 Excerpt
Highly Influenced

Accessible article: involving people with learning disabilities in research

R. Garbutt, J. Tattersall, J. Dunn, R. Boycott-Garnett
British Journal of Learning Disabilities • 2010
View 1 Excerpt

An Evaluation of Consumer Involvement in the London Primary Care Studies Programme. Peninsula Medical School University of Exeter and Plymouth, Exeter

A. Barnard, M. Carter, +3 authors A. Ellis
View 1 Excerpt

Gambling for capital: learning disability, inclusive research and collaborative life histories

K. Bjornsdottir, A S.Svensdottir
British Journal of Learning Disabilities • 2008

Pathways to participatory research in developing a tool to measure feelings

M. Brooks, S. Davies
British Journal of Learning Disabilities • 2007
View 1 Excerpt

People with learning disabilities as consumer researchers

C. Feldner
Learning Disability Today • 2007
View 1 Excerpt

Background Evidence for the DRC’s Formal Investigation into Health Inequalities Experienced by People with Learning Disabilities and People with Mental Health Problems

A. Nocon
Disability Rights Commission, • 2006
View 1 Excerpt

Obtaining views on health care from people with learning disabilities and severe mental health problems

A F.Young
British Journal of Learning Disability • 2006

Similar Papers

Loading similar papers…