Actualizing Personalized Healthcare for Women through Connected Data Systems: Breast Cancer Screening and Diagnosis

@article{Nelson2013ActualizingPH,
  title={Actualizing Personalized Healthcare for Women through Connected Data Systems: Breast Cancer Screening and Diagnosis},
  author={Heidi D. Nelson and Roshanthi Weerasinghe},
  journal={Global Advances in Health and Medicine},
  year={2013},
  volume={2},
  pages={30 - 36}
}
Background: Healthcare organizations have invested in electronic patient data systems, yet use of health data to optimize personalized care has been limited. Primary Study Objective: To develop and pilot an integrated source of health system data related to breast healthcare. Methods/Design: This study is a quality improvement project. Patient-level data from multiple internal sources were identified, mapped to a common data model, linked, and validated to create a breast healthcare-specific… Expand
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References

SHOWING 1-10 OF 33 REFERENCES
National Quality Measures for Breast Centers (NQMBC): A Robust Quality Tool
TLDR
A real-time web-based quality improvement program facilitates breast center input, providing immediate comparisons with other centers and results serially over time, demonstrate the power and potential of web- based tools for data collection and analysis from hundreds of centers who care for thousands of patients. Expand
Use of Medications to Reduce Risk for Primary Breast Cancer: A Systematic Review for the U.S. Preventive Services Task Force
TLDR
Tamoxifen was more effective than raloxifene but also increased the incidence of endometrial cancer and cataracts, and 13 risk-stratification models were modest predictors of breast cancer. Expand
Breast Cancer Surveillance Consortium: a national mammography screening and outcomes database.
TLDR
Screening effectiveness in community practice today could exceed that estimated in trials because the technical and interpretative quality of mammography has improved since the trials were performed and the level of efficacy in trials may not pertain to community practice. Expand
Screening for breast cancer: U.S. Preventive Services Task Force recommendation statement.
TLDR
The USPSTF concludes that the current evidence is insufficient to assess additional benefits and harms of either digital mammography or magnetic resonance imaging instead of film mammography as screening modalities for breast cancer. Expand
Advancing the Science for Active Surveillance: Rationale and Design for the Observational Medical Outcomes Partnership
TLDR
The governance structure, data-access model, methods-testing approach, and technology development of this effort, as well as the work that has been initiated, are described. Expand
Decision aids for people facing health treatment or screening decisions.
TLDR
Tests indicate that decision aids improve knowledge and realistic expectations; enhance active participation in decision making; lower decisional conflict; decrease the proportion of people remaining undecided, and improve agreement between values and choice. Expand
A review on systematic reviews of health information system studies
TLDR
There is some evidence for improved quality of care, but in varying degrees across topic areas, and key factors that influence HIS success included having in-house systems, developers as users, integrated decision support and benchmark practices, and addressing such contextual issues as provider knowledge and perception, incentives, and legislation/policy. Expand
Screening for Breast Cancer: An Update for the U.S. Preventive Services Task Force
TLDR
New studies and evidence gaps that were unresolved at the time of the 2002 USPSTF recommendation are focused on, including the effectiveness of mammography screening in decreasing breast cancer mortality among average-risk women aged 40 to 49 years and 70 years or older. Expand
The feasibility of using natural language processing to extract clinical information from breast pathology reports
TLDR
It is demonstrated how a large body of free text medical information such as seen in breast pathology reports, can be converted to a machine readable format using natural language processing, and described the inherent complexities of the task. Expand
Development of a diagnostic test set to assess agreement in breast pathology: practical application of the Guidelines for Reporting Reliability and Agreement Studies (GRRAS)
TLDR
A step-by-step description of the methods used to create four complex test sets for a study of diagnostic agreement among pathologists interpreting breast biopsy specimens using the newly developed Guidelines for Reporting Reliability and Agreement Studies (GRRAS). Expand
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