A values-driven and evidence-based health care psychology for diverse sex development
@article{Liao2014AVA, title={A values-driven and evidence-based health care psychology for diverse sex development}, author={Lih Mei Liao and Margaret Simmonds}, journal={Psychology \& Sexuality}, year={2014}, volume={5}, pages={101 - 83} }
The integration of psychology into multidisciplinary care for people affected by ‘disorders of sex development’ is acknowledged in most recent care standard documents. However, psychological evidence that can inform service development is currently insubstantial for specific reasons, some of which are outlined in this article. We argue for psychological activities and their prioritisation to be equally driven by the professional values embedded in clinical psychology and to seek user input in…
35 Citations
Intersex or Diverse Sex Development: Critical Review of Psychosocial Health Care Research and Indications for Practice
- Psychology, MedicineJournal of sex research
- 2019
Recommendations concerning health care communication, the importance of taking time for emotion, and the process of building supportive relationships are offered, indicating how psychosocial professionals can contribute to health care and well-being in the context of dsd when appropriately resourced and trained.
Psychosocial care and support in the field of intersex/diverse sex development (dsd): counselling experiences, localisation and needed improvements
- Psychology, MedicineInternational Journal of Impotence Research
- 2021
An exploratory online study investigating counselling experiences and the ideas that different groups of participants have concerning the localisation of counselling structures and improving care shows a gap between receiving psychosocial and medical care in the group of adult lived-experience experts, who had received less psychossocial care than medical interventions.
The role of psychologists in multi-disciplinary teams for intersex/diverse sex development: interviews with British and Swedish clinical specialists
- Psychology, Medicine
- 2019
A need to substantially re-work relationships between team members and reflect on the overall care ethos in order to engage patients and families psychologically is suggested.
Past experiences of adults with disorders of sex development.
- MedicineEndocrine development
- 2014
In this chapter, the work of a patient support group in Spain is presented (objectives, activities and opinions) and present views and past experiences of a number of its adult members are reflected.
Young people with a variation in sex characteristics in Aotearoa/New Zealand: identity, activism and healthcare decision-making
- PsychologyCulture, health & sexuality
- 2020
Findings reveal the pressure on young people with a VSC to conform to cultural and societal norms, specifically, heteronormative and traditional constructs of how male and female bodies should look in Aotearoa/New Zealand society.
Global health burden and needs of transgender populations: a review
- Political Science, MedicineThe Lancet
- 2016
Coping With Diverse Sex Development: Treatment Experiences and Psychosocial Support During Childhood and Adolescence and Adult Well-Being
- Psychology, MedicineJournal of pediatric psychology
- 2017
Social support and DSD-related treatment experiences appear to have an impact on adult well-being and Appropriate psychosocial care including peer-to-peer support should be made available to children with DSD and their families.
"It's Part of Me, Not All of Me": Young Women's Experiences of Receiving a Diagnosis Related to Diverse Sex Development.
- Medicine, PsychologyJournal of pediatric and adolescent gynecology
- 2016
Knowing bodies : Making sense of Intersex/DSD a decade post-consensus
- Psychology
- 2017
In this thesis, I address people’s experiences of being born with a body that does not meet the normative definitions of male or female. The situation when sex characteristics develop in ways that do…
An undermined therapeutic alliance: A case study
- PsychologyPsychodynamic Practice
- 2021
Seeking help and assistance can prove to be a frustrating experience for intersex individuals: physicians and psychologists can be misinformed about variations of sex characteristics (VSC) and their…
References
SHOWING 1-10 OF 116 REFERENCES
Psychosocial and psychosexual aspects of disorders of sex development.
- Medicine, PsychologyBest practice & research. Clinical endocrinology & metabolism
- 2010
Emotionally and cognitively informed consent for clinical care for differences of sex development
- Psychology, Medicine
- 2014
A holistic approach to emotionally and cognitively informed consent in this setting is proposed, with inclusion of psychosocial and peer support from the earliest stages.
Learning to assist women born with atypical genitalia: journey through ignorance, taboo and dilemma
- Psychology
- 2003
This aim of this article is to increase awareness of the psychological aspects of a range of conditions associated with atypical development of the reproductive-genital system. In highlighting some…
Children with disorders of sex development: A qualitative study of early parental experience
- Medicine, PsychologyInternational journal of pediatric endocrinology
- 2011
Parents' experiences and gaps in understanding can be used to inform the clinical care of patients with DSD and their families.
Quality of life in 70 women with disorders of sex development.
- Medicine, PsychologyEuropean journal of endocrinology
- 2006
An impaired quality of life and more affective distress were observed especially in CAH patients and virilized 46,XX and 46,XY females, may be caused by trauma from distressing diagnostic procedures, the chronic illnesses per se, and psychosocial consequences of the disorders.
Psychological research and intersex/DSD: recent developments and future directions
- Psychology, Medicine
- 2014
This article looks at the intersection where academic and clinical psychologies converge with patient care in the case of the intersex/DSD individual, post-consensus statement and maps out conceptual advances in understanding psychosocial and psychosexual well-being.
Disclosing Disorders of Sex Development and Opening the Doors
- MedicineSexual Development
- 2010
The importance of full disclosure in disorders of sex development (DSD), as a universal human right and closely related to informed consent, is focused on.
Adolescent girls with disorders of sex development: A needs analysis of transitional care.
- Medicine, PsychologyJournal of pediatric urology
- 2010
Fear of devaluation: understanding the experience of intersexed women with androgen insensitivity syndrome.
- Medicine, PsychologyBritish journal of health psychology
- 2004
The pivotal concept is a woman's fear of devaluation which is connected to her level of adaptation and perception of having a compromised womanhood and related to her medical management and involvement with others via a support group and in talking about AIS.
Parent-to-parent support: a critical component of health care services for families.
- Medicine, PsychologyIssues in comprehensive pediatric nursing
- 1992
The philosophy of parent-to-parent support, its unique contributions in the health care setting, and the ways that health care providers can assist in creating an environment in which parents and professionals can work together more effectively are described.