A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD

@inproceedings{Lucas2015AQM,
  title={A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD},
  author={Jane S Lucas and Laura Behan and Audrey Dunn Galvin and Adrianne N Alpern and Anjana Madan Morris and Mary P. Carroll and Michael R Knowles and Margaret W. Leigh and Alexandra L. Quittner},
  booktitle={The European respiratory journal},
  year={2015}
}
Primary ciliary dyskinesia (PCD) is characterised by chronic suppurative lung disease, rhino-sinusitis, hearing impairment and sub-fertility. We have developed the first multidimensional measure to assess health-related quality of life (HRQoL) in adults with PCD (QOL-PCD).Following a literature review and expert panel meeting, open-ended interviews with… CONTINUE READING

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