A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

Abstract

BACKGROUND Caring for a child with a chronic condition, such as sickle cell disease, can have a significant impact on parents and families. In order to provide comprehensive care and support to these families, psychometrically sound instruments are needed as an initial step in measuring the impact of chronic diseases on parents and families. We sought to… (More)
DOI: 10.1186/1477-7525-7-32

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