A national internet-linked based database for pediatric interstitial lung diseases: the French network

@inproceedings{Nathan2012ANI,
  title={A national internet-linked based database for pediatric interstitial lung diseases: the French network},
  author={Nadia Nathan and Rola Abou Taam and Ralph Epaud and Christophe Delacourt and Antoine Deschildre and Phillipe Reix and Rapha{\"e}l Chiron and Ulrika de Pontbriand and Jacques Brouard and Michael Fayon and Jean-Christophe Dubus and Lisa Giovannini-Chami and François Br{\'e}mont and Katia Bessaci and Cyril Etienne Schweitzer and Marie-Laure Dalphin and Christophe Marguet and V{\'e}ronique Houdouin and Françoise Troussier and Anne Sardet and Eglantine Hullo and Isabelle Gibertini and Malika Mahloul and Delphine Michon and Adrien Priouzeau and Laurie Galeron and J-F. Vibert and Guillaume Thouvenin and Harriet Corvol and Jacques Deblic and Annick Cl{\'e}ment},
  booktitle={Orphanet journal of rare diseases},
  year={2012}
}
BACKGROUND Interstitial lung diseases (ILDs) in children represent a heterogeneous group of rare respiratory disorders that affect the lung parenchyma. After the launch of the French Reference Centre for Rare Lung Diseases (RespiRare®), we created a national network and a web-linked database to collect data on pediatric ILD. METHODS Since 2008, the database has been set up in all RespiRare® centres. After patient's parents' oral consent is obtained, physicians enter the data of children with… CONTINUE READING
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