A narrative literature review of the contribution of volunteers in end-of-life care services

  title={A narrative literature review of the contribution of volunteers in end-of-life care services},
  author={Sara M. Morris and Amanda Wilmot and Matthew Hill and Nick Ockenden and Sheila A. Payne},
  journal={Palliative Medicine},
  pages={428 - 436}
Background: Volunteers are integral to the history of hospices and continue to play a vital role. However, economic, policy and demographic challenges in the twenty-first century raise questions about how best to manage this essential resource. Aim: This narrative review explores the recent literature on end-of-life care volunteering and reflects upon the issues pertinent to current organisational challenges and opportunities. Design: The parameters of the review were set deliberately wide in… 

Hospice volunteers: bridging the gap to the community?

The evidence suggests that there is substantial scope for hospices to develop the strategic aspects of volunteering through greater community engagement and involvement and by increasing diversity and exploiting volunteers' ‘boundary’ position more systematically to educate, recruit and raise awareness.

Palliative care volunteer roles in Nordic countries: qualitative studies—systematic review and thematic synthesis

Volunteers provide valuable support to patients and next of kin that differs from professionals’ support, and Professionals’ understandings of volunteers’ role should be improved to strengthen volunteers” role in palliative care in Nordic countries.

Exploring the relationship between volunteering and hospice sustainability in the UK: a theoretical model.

It is suggested that hospice sustainability is dependent on volunteers; however, the supply and retention of volunteers is affected by internal and external factors.

Exploring the role of volunteers in social care for older adults

Purpose This paper aims to report the findings of a study that explores the contribution volunteers make to social care for older adults, identifying lessons for the social care sector and

The boundaries of care work: a comparative study of professionals and volunteers in Denmark and Australia.

  • C. Overgaard
  • Sociology
    Health & social care in the community
  • 2015
Two different models of the roles of volunteers in tension with professional care providers are suggested, one located in Denmark and one in Australia, which recognise that volunteers add to the level of care delivered by the organisations and allow for a discussion that moves away from normative discussions of 'not taking somebody's job'.

Factors affecting rural volunteering in palliative care - an integrated review.

Recommendations for future Australian research includes examination of the suitability of current models of palliative care practice in addressing the needs of rural communities; the recruitment, training, ongoing education and support of volunteers in rural palliatives care provision to ensure equitable care for all communities in Australia regardless of location.

Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall)

Volunteers were mostly prevented from supporting many forms of palliative care, particularly in in-patient hospices, which may have quality and safety implications given their previously central roles.

Volunteers in specialist palliative care: a survey of adult services in the United Kingdom.

This comprehensive survey of volunteer activity in U.K. specialist palliative care provides an up-to-date picture of volunteer involvement in direct contact with patients and their families, such as providing emotional care, and the extent of their involvement in day and bereavement services.

Understanding the experiences of community hospice volunteers:a narrative analysis

It is suggested that hospice volunteers could play an important role in providing community support to dying people, but there are conflicting views as to whether volunteers should fulfil a



Dilemmas in the use of volunteers to provide hospice bereavement support: Evidence from New Zealand

This paper seeks to explore the tension between professionalization and volunteerism in health care. It focuses on the role of volunteers who provide bereavement support services within hospices and

Ethical issues in palliative care. Views of patients, families, and nonphysician staff.

The findings of this study will help guide policy decisions and setting of educational priorities in end-of-life care, particularly regarding the importance of adequate communication.

Making sense of health and illness in palliative care: Volunteers' perspectives

The stance of volunteers on two fundamental concepts, “health” and “illness,” as well as their related understanding of “palliative care” are explored to encourage communication and contribute to the palliative Care movement's need for interdisciplinary care.

Hospice Palliative Care Volunteers: A Unique Care Link

Seven themes are identified that exemplify specific ways in which HPC volunteers have a positive impact on the lives of spousal caregivers, and can be incorporated into the further development of training and support programs for HPC Volunteers.

Narrative Accounts of Volunteers in Palliative Care Settings

Significant themes emerged around what volunteers considered the most valuable aspects of their experience, including freedom of choice and the ability to use their natural gifts as an important condition for satisfaction.

The Inventory of Motivations for Hospice Palliative Care Volunteerism: A Tool for Recruitment and Retention

The IMHPCV was adapted and extended and 5 internally consistent subscales were identified through principal components analysis: altruism, civic responsibility, self-promotion, leisure, and personal gain; Convergent and discriminant validity were demonstrated using an established measure of empathy.

The role of volunteers in hospice bereavement support in New Zealand

  • S. Payne
  • Psychology
    Palliative medicine
  • 2001
Assessing the role of hospice bereavement volunteers in New Zealand revealed that most volunteers were recruited through personal contact and newspapers, and two-thirds had generic volunteer training, but only a third had specific training in bereavement.

Palliative Care Volunteers: Why Do They Do It?

“To help ease the pain of those living with a life-threatening illness” was rated as the most influential reason for becoming a palliative care volunteer.

Programmatic barriers to providing culturally competent end-of-life care

It is concluded that directors should provide leadership in their agencies in welcoming diversity in meeting the needs of diverse groups and develop cultural competence and provide culturally competent care.